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NEWS

UPCOMING WEBINAR: Access to health care services and support for HD patients in Europe

Earlier this year we conducted an online survey trying to draw the European map of access to support and care for HD families and use this to advocate for good access for everyone affected by HD. 👏 We are proud to share that this survey was filled up by 800 HD family members and healthcare professionals from 31 countries.

The survey results will be presented in a Webinar by Filipa Júlio, on Thursday December 8 at 3 – 4 pm CET. After her presentation, we will open a Q&A and discussion session about what the results mean and how to best make use of them.

🗓️ Thursday, December 8 2022
🕘 3 – 4pm CET

Register now for the webinar here

Moving Forward new section: The Bookshelf

The Moving Forward team is happy to announce a new feature in the Moving Forward webpage, the Bookshelf. The team has compiled many interesting books of different genres, all of them related to Huntington’s Disease (HD). Here you can find a comprehensive list with a summary of each book and additional information about where to buy or read it online 📖

 🎯 Since one of the main goals of Moving Forward is to increase the health literacy and provide reliable information to the HD community, the project team thought it would be interesting to have a new section dedicated to all you book lovers out there.

Take a look at our international bookshelf

Coping with Symptoms of Huntington's Disease

We loved Tess Persson open up story about Huntington’s Disease, the importance of our mental health and the value of the family.
 
Watch her video presentation at the Bologna EHDN 2022 Conference.

Full Document here:

CONSENSUS STATEMENT

Improving access to care and treatment for Huntington’s Disease patients and families.

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