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Meeting on how to improve care in Europe - Video!

In January, patient advocates visited the European Reference Network for Rare Neurological Diseases. During the meeting, they discussed how to provide better care and facilitate knowledge. 

In January, patient advocates visited the European Reference Network for Rare Neurological Diseases. During the meeting, they discussed how to provide better care and facilitate knowledge. 

In January, patient advocates visited the European Reference Network for Rare Neurological Diseases. During the meeting, they discussed how to provide better care and facilitate knowledge. 

The series started on December 29. On the podcast, topics such as genome editing and health care are being discussed by a multidisciplinary team.

The series started on December 29. On the podcast, topics such as genome editing and health care are being discussed by a multidisciplinary team.

The series started on December 29. On the podcast, topics such as genome editing and health care are being discussed by a multidisciplinary team.

Join Rare Disease Day!

29 February 2020 will be the thirteenth international Rare Disease Day. On this day, hundreds of patient organisations will hold awareness-raising activities.

29 February 2020 will be the thirteenth international Rare Disease Day. On this day, hundreds of patient organisations will hold awareness-raising activities.

29 February 2020 will be the thirteenth international Rare Disease Day. On this day, hundreds of patient organisations will hold awareness-raising activities.

Trial Finder Launched in Europe

We have launched the first HD Trial Finder in Europe! The platform makes it easier to find out more about Huntington’s disease (HD) trials and studies in Europe.

We have launched the first HD Trial Finder in Europe! The platform makes it easier to find out more about Huntington’s disease (HD) trials and studies in Europe.

We have launched the first HD Trial Finder in Europe! The platform makes it easier to find out more about Huntington’s disease (HD) trials and studies in Europe.

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NEWS


Meeting on how to improve care in Europe

In January, patient advocates visited the European Reference Network for Rare Neurological Diseases. During the meeting, they discussed how to provide better care and improve ...
Read More
Left to right: Olca Engin-Sarialtin, Astri Arnesen, Svein Olaf Olsen.

September 13: EHA Business Meeting

The European Huntington Association (EHA) Business Meeting is held every other year and is taking place around the same time as the EHDN Plenary Meeting ...
Read More

“RARE/D”: A NEW RARE DISEASE PODCAST

RARE/D is a new podcast series that started on December 29. On the podcast, topics such as genome editing and health care are being discussed ...
Read More


CONTACT US

Astri Arnesen
President