COVID-19 & HUNTINGTON’S DISEASE

Learn More.

Facebook Twitter Instagram Youtube Linkedin-in Vimeo-v

Associations

Find Huntington's Disease
Associations near you

Resources

Different resources
developed for you

Ask our Doctor

Do you have any questions?
Ask our doctor

Events

Find out more about
upcoming events

What is HD CAB? (UPDATED)
Which organization joines this project? How they are working together? What do they want to achieve in HD-CAB? Watch this video introduction to the new initiative of EHA, IHA and HDYO.
Click here
EHA Board Meeting & General Assembly
Amsterdam, September 24th and 25th 2021
Click Here
FIFTY PERCENT - Short Documentary
Lillian Hanly has a 50/50 chance of inheriting Huntington’s, a neurodegenerative disease. With a number of her family testing positive for the gene, and her mother already affected by it, she must come to a decision. Get tested now or continue to live on in the unknown.
Full video here
Research Participation: The view of persons at risk and persons with premanifest HD
A Survey conducted by the European Huntington Association (EHA) Filipa Jùlio on behalf of the EHA.
Full video here
Positive for Huntington's Disease
Meet Yousef Gamal El-Din, who speaks for the first time about his mother's tough journey with Huntington's Disease (HD). In 2007, Yusuf's mother, Helen Jamal Din-Gagner was diagnosed HD and left a devastating effect on the entire family.
Full video here
Full video here
Previous
Next

Moving Forward in Russia and Spain

Our recent project “MOVING FORWARD” is working on new translations! 🌎
 
The Webpage is now available in English and Russian, and soon will be translated into Spanish, French and Polish.
 
This project wants to hear and engage those traditionally less involved in research – persons at risk for HD and persons with premanifest HD. We believe that these groups have different needs, worries and wishes regarding research participation compared to people in more advanced HD stages.
 
 
“𝐌𝐨𝐯𝐢𝐧𝐠 𝐅𝐨𝐫𝐰𝐚𝐫𝐝 – 𝐓𝐨𝐰𝐚𝐫𝐝 𝐚 𝐅𝐮𝐭𝐮𝐫𝐞 𝐰𝐢𝐭𝐡 𝐄𝐟𝐟𝐞𝐜𝐭𝐢𝐯𝐞 𝐃𝐢𝐬𝐞𝐚𝐬𝐞-𝐌𝐨𝐝𝐢𝐟𝐲𝐢𝐧𝐠 𝐓𝐡𝐞𝐫𝐚𝐩𝐢𝐞𝐬 𝐟𝐨𝐫 𝐇𝐮𝐧𝐭𝐢𝐧𝐠𝐭𝐨𝐧’𝐬 𝐃𝐢𝐬𝐞𝐚𝐬𝐞”

Full Document here:

CONSENSUS STATEMENT

Improving access to care and treatment for Huntington’s Disease patients and families. Sign our petition

Let's get to 500 signs!
Signs

NEWS

The Healthe-rnd consortium was finally able to meet again face-to-face in Prague

Most of the partners were able to attend despite the ongoing restrictions due to the pandemic.  The ones who couldn’t make it to Prague attended on Zoom. It was great to see each other again and also meet new faces as there have been additional people brought into work in the project.

Read the full article here

HD-CAB new video

😊 Listen to the HD-CAB Coalition of partners talking about their first steps working together, their reasons to join this initiative and what do they want to achieve in HD-CAB 🤝 
 
In this video presentation, we have the participation of our HD-CAB Management Board; Astri Arnesen from EHA, Svein Olaf Olsen from IHA and Hayley Hubberstey from HDYO.
 
 
🗣 𝐎𝐧𝐞 𝐕𝐨𝐢𝐜𝐞 𝟒 𝐇𝐃

HD-CAB Website announcement!

The European Huntington Association (EHA), the International Huntington Association (IHA) and the Huntington’s Disease Youth Organisation (HDYO) are excited to officially announce the new website for this project, called HD-CAB. As a coalition of partners, their main mission is to represent the voice of the global HD community and provide HD community experience to regulators, industry, researchers and governing bodies. 

You visit the new site here 

SUBSCRIBE TO OUR NEWSLETTER

© 2021 European Huntington Association. Built using WordPress and the EmpowerWP theme.