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CONSENSUS STATEMENT
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KICK-OFF MEETING ONLINE FOR HD-CAB
The Team Members of HD-CAB (Community Advisory Board) had last Saturday 4th their first globally Webinar with different advocates and partners.
The European Huntington Association (EHA), the International Huntington Association (IHA) and the Huntington’s Disease Youth Organisation (HDYO) are excited to officially announce their new project, called HD-CAB. As a coalition of partners, their main mission is to represent the voice of the global HD community and provide HD community experience to regulators, industry, researchers and governing bodies.
You can learn more about HD-CAB here
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NEWS
EHA Board Meeting and General Assembly
The EHA Board members met in Amsterdam on September 24th and 25th, 2021.
The EHDN in collaboration with the International Parkinson and Movement Disorder Society is delighted to announce a virtual HD course series ➡ Huntington’s Disease: From Foundational Principles to Assessment and Treatment
🗣 The primary purpose of this program is to provide information on foundational principles, assessment and management of Huntington’s disease.
💻 Online Course
📆 During October 2021 (3 Friday slots- 8, 15 & 22 October)
☑️ Registration: Free
Article about EHDN Remote Conference
After attending the EHDN Conference of 9-11th September 2021, Astri Arnesen wrote an article that summarize all the new updates on the HD Clinical Trials. This are some encouraging news!