The European Huntington Association webpage
Inspiring and empowering people affected by Huntington Disease.
We are an umbrella organization formed by Huntington’s Sisease (HD) Associations all over Europe.
OUR LATEST NEWS
UPCOMING WEBINAR: Novartis Discusses the VIBRANT-HD Trial
Join the European Huntington Association webinar, in collaboration with Novartis, to learn more about VIBRANT-HD trial and the decision to stop the development of branaplam in Huntington’s Disease. Novartis clinical leaders and representatives will answer all your questions about the study.
The webinar speakers will include VIBRANT-HD clinical site investigator and Steering Committee member, Bernhard Landwehrmeyer, Medical lead for the branaplam program, Dr. Harry Ramos, and Clinical program head for the branaplam program, Dr. Beth Borowsky.
Join us for Rare Disease Day!
February 28th is Rare Disease Day, when the rare community comes
together, finds support and raise awareness for rare diseases across the globe.
This year we want you to join the #LightUpForRare campaign. To participate you just need to send us a photo with some coloured lights or candles (yout don’t need to appear on the photo if you don’t like to).
WEBINAR: Updates on the Select HD clinical trial on Huntington's Disease
The European Huntington Association, in collaboration with Wave, organized a Webinar on the updates of Select-HD clinical trial for Huntington’s disease.
Dr. Ralf Reilmann, founder of the George-Huntington Institute in Muenster, presented an overview of the SELECT-HD trial, which is looking at the safety of the investigational molecule called WVE-003. After his presentation, we had a Q&A session with Danlin Xu, HD Medical Director at Wave, and Marissa Volpe, HD Program Lead at Wave.
February 28th, 2023
Rare Disease Day 2023
🕯️ February 18th is Rare Disease Day.
And we just wanted to say thank you to the community for participating and raising their lights to create awareness for the rare diseases.
💜 Today light up your hope and understand that we are stronger together because we know no borders
Check out our Online Resources
Get Active!
Together with physiotherapists, we have developed a resource to help you live an active life.
Ask the doctor
Do you have any questions about Huntington's disease? Ask our doctor!
nutrition
Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.
Learn more about our International Projects
Moving Forward
This project wants to hear and engage those traditionally less involved in Huntington Disease research.
HD Trial finder
An European platform where all Huntington’s disease trials are presented in plain language.
HD-CAB
An European platform where all Huntington’s disease trials are presented in plain language.
HealthE-RND
An online eHealth platform to improve the quality of life for those of us affected by rare diseases
Subscribe to our Newsletter
To learn more about our projects, events and other activities related to huntington disease and our big community!
