EUROPEAN HUNTINGTON ASSOCIATION

We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.

  • Connect HD affected all over Europe
  • Raise awareness
  • Inform
  • Support research

EHA Board elected October 2022

OUR LATEST NEWS

Upcoming webinar: Prilenia filing for EMA approval for Pridopidine – What does this mean for patients?

The European Huntington Association, in close cooperation with Prilenia, decided to organise a webinar on 🗓️ March 18th at 6pm CET to better understand this news and create a space for the Huntington’s community to learn and share their thoughts.

We are delighted to announce that Henk Schuring, Chief Regulatory and Commercialization Officer at Prilenia, will shed light on the rationale behind this decision and the process leading up to it. What factors influenced their decision?

Anne Rosser, Professor at Cardiff University, will discuss the significance of this major step for patients and families. She will share her insights on how we should perceive the opportunities presented and the precautions we should bear in mind. Following the presentations, there will be a dedicated time for questions and discussions.

💜 Register now and use this opportunity to gain insights, presented in a family-friendly language, into Prilenia’s latest news and future steps

Prilenia will ask for market approval at the European Medicines Agency for Pridopidine (an oral drug) in Huntington’s Disease.

Today, Prilenia made a groundbreaking announcement, revealing that they are going to apply for market authorization at the European Medicines Agency (EMA) within the next few months. 💪This marks a historic moment as the first-ever medicine for Huntington’s Disease (HD) reaches this critical stage.

🙌 We think this is a day to celebrate. However, we fully realise this is not the end of the journey. submitting an application to the EMA and the review process takes time, and can have both a positive or a negative output. In collaboration with Prilenia we are organizing a Webinar, to provide us all with a more in-depth understanding of the rationale behind the decision to apply for market approval and what it means for patients.

💪 Ready, set, go! The kick-off meeting of the “Huntington Academy” project

A few weeks ago, the team behind the “Huntington Academy” project gathered in Brussels for a two-day meeting.

Astri Arnesen, Claudia Azañedo and Filipa Júlio from the European Huntington Association, Ruth Blanco from the Spanish Huntington Association (ACHE), Regina Gospodinova from the Bulgarian Huntington Association and Olivier Graf from the Ligue Huntington Francophone Belge have literally sat around a table to discuss the goals, action plans and next steps of the “Huntington Academy” project funded by the European initiative Erasmus+.

👩‍💻 These two days were full of productive discussions about what should be the main features and contents of this new e-learning platform that aims to educate and empower the caregivers of people impacted by HD.

It was great to get to know distinct and yet similar HD realities, share personal and professional experiences and learn from each other.

🙌 Everyone returned home stronger and more motivated than ever to make a positive contribution to the global HD community. Soon you will find out more about this project, so please stay tuned!

✨ Relive the incredible moments from EHA Conference 2023 in Belgium!

🌎 With nearly 300 participants from over 23 countries, the EHA Conference in Belgium marked a decisive opportunity for the HD global community and contributed to our main values for this event: 💡 Knowledge, 💙 empathy and 💪 empowerment.

🙌 A united community for a united action.  

Check out our Online Resources

Get Active!

Together with physiotherapists, we have developed a resource to help you live an active life.

Ask the doctor

Do you have any questions about Huntington's disease? Ask our doctor!

nutrition

Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.

Sleep

Do you have trouble sleeping? Get simple tips on how to improve sleep here.

Oral care

Keeping the mouth healthy is extremely important for people affected by Huntington's disease.

online training

An online free course about Huntington’s Disease (HD) and how to provide the best care.

LEARN MORE ABOUT OUR INTERNATIONAL PROJECTS

Moving Forward

This project wants to hear and engage those traditionally less involved in Huntington Disease research.

HD Trial Finder

An European platform where all Huntington’s disease trials are presented in plain language.

HD-CAB

A global initiative to represent the voice of the global HD community.

HealthE-RND

An online eHealth platform to improve the quality of life for those of us affected by rare diseases

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