On May 4, 2015, Jamie Walters – a volunteer from the Huntington Society of Canada (HSC) – was instrumental in lighting up the CN Tower to raise the visibility of Juvenile HD (in purple) and HD (in blue) and Huntington disease awareness month, held each May.
When the sun set on May 4th, hundreds of thousands of Canadians saw the CN Tower lit up in purple and blue. And Canada’s HD community lit up with pride.
Thanks to Jamie’s enthusiasm, and at the urging of our HD families and volunteers, the Huntington Society of Canada are helping them to expand “LightItUp4HD” all across Canada by lighting up buildings, monuments and statues during the month of May 2016. They have invited sister organizations from around the world to join in this movement. Scotland, Ireland, and the United States, are just some of the countries working to #LightItUp4HD during the month of May 2016.
Please visit www.huntingtonsociety.ca/lightitup4hd-may2016/ to stay up-to-date on confirmed sites.
Social Media Content Bank
Huntington Society of Canada (HSC) have created the following sample social media messages can help get you started. Feel free to customise to suit your organization’s voice. Add photos and graphics (we have attached some for your use) to make your social media content more appealing.
Facebook:
- May is Huntington disease awareness month. In honour, we will be lighting up (insert site) on (insert date). Talk to your neighbour about HD and help educate people on what HD is. For more information, visit www.huntingtonsociety.ca.
- Ever wondered what Huntington disease is? Watch this powerful public service announcement from the Huntington Society of Canada and share to raise awareness during #HDAwareness month this May. Look out for blue and purple lights at (insert site) on (insert date) as we #LightItUp4HD
Twitter:
- May is Huntington disease awareness month. We’re going to #LightItUp4HD on (insert date) at (insert site). Learn more about HD at www.huntingtonsociety.ca.
- #HDAwareness month is the perfect time to learn about Huntington disease. We’re supporting @HuntingtonSC and will #LightItUp4HD on (insert date).
- Join us in celebrating #HDAwareness month with @HuntingtonSC. See us #LightItUp4HD at (insert site) on (insert date).
Please encourage members of your local community to share on social media and tag any posts/pictures pertaining to the sites with the hashtag: #LightItUp4HD
Please direct any questions or comments to Sobia Khan at skhan@huntingtonsociety.ca.