In November the European Huntington Association (EHA) met two strong women in Oslo, Norway. We interviewed them to hear their side of the story: how is it really to live with Huntington’s Disease (HD)? Watch their answers in the video below.
Angela is 25 years old. She got diagnosed in the summer of 2016, but started to get sick in her early twenties. She is currently living in a student apartment which she shares with five other students. However, her everyday life can sometimes get hard. Among many other things, her movements make dressing herself into a time-consuming task. Despite all this, Angela still has hope.
Tove Berg learned that she had HD when she was around 60 years old. It came as a shock as nobody in her family had the disease. Before getting the disease Tove worked as a professor. To deal with the situation she started to write – as she had previous done in her profession. Her writings about HD has been published in two Norwegian journals (here and here). She is now at a day-care facility a few days a week where Tove is running writing courses for patients and staff. Her story is a strong testimony of how a life with the disease is still worthwhile.
Watch their own stories in the video below.
For english subtitles: press the “CC” button in the lower right corner.