Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the Huntington’s Disease (HD) community!
If you are new to the European Huntington’s Disease Network, known as EHDN, it is a nonprofit research network with different aims: to advance research, facilitate clinical trials and improve clinical care in HD. The network creates a platform where scientists, clinicians, patients and families can collaborate on studies. And they publish the EHDN newsletter three times a year.
In the current edition you can read about the day Pope Francis had an audience with HD families from all over the world. You will find highlights from the HD Therapeutics Conference, updates on clinical trials and Enroll-HD.
You can read about E-health for HD patients developed in the Netherlands, which – hopefully – will enable patients to remain at home for longer. And last but not least you can read about Lysle Turner. A brave young man that became the youngest South African to reach the summit of Mount Everest. At Mount Everest the 26-year-old planted a flag bearing the names of 200 people who had lost their lives to HD.
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