We understand that the COVID-19 pandemic can cause a lot of strain, stress and isolation on Huntington’s disease (HD) families, patients and relatives. All the restrictions imply big changes in daily life and the routines are hard to maintain. We hear that families struggle, feel scared and isolated.
In order to support you in this situation, the European Huntington Association in collaboration with the European Reference Network for Rare Neurological Diseases are organizing a webinar on Zoom with a panel of people from the Huntington community.
During the webinar, 14 speakers from the Huntington’s disease field will be there to respond to your questions and concerns in 18 languages.
The webinar will give you information about the specific risks for HD patients, update on consequences for the ongoing HD studies and trials, and some advice on how to cope with the new situation.
In addition, to have an open Q&A session in English, the participants can chat (write) with the speakers individually and private. In the individual chat, you can post your questions in your native language.
Topic: Huntington’s disease and the COVID-19 pandemic – a difficult combination
Date: Monday, April 6
Time: 4 – 5.30 pm CET
Join the webinar: https://zoom.us/j/284555212
(There is no need to sign up in advance to the webinar)
Astri Arnesen – European Huntington Association
Professor Bernhard Landwehrmeyer (Neurologist) – Germany
Alzbeta Muehlbaeck (Neuropsychiatrist ) – Germany/Slovakia
Professor Anne-Catherine Bahoud Levi (Neurologist) – France
Professor Hugh Rickards (Psychiatrist) – UK
Dr Yuri Seliverstov – Russia
Natalia Grigorova (Psychologist) – Bulgaria
Filipa Julio (Neuropsychologist) – Portugal
Dr Alzbeta Muehlbaeck (Neuropsychiatrist) – Germany
Professor Maria Judit Molnar (Neurogeneticist) – Hungary
Dr Jose Lopez Sendon (Neurologist) – Spain
Dr Lasse Philstrøm (Neurologist) – Norway
Ramona Moldova (Neuropsychologist ) – Romania
Dr Wioletta Krysa (Geneticist ) – Poland
Professor Ferdinando Squitieri (Neurologist) – Italy Marina Pavlou (Social worker) – Cyprus