We are excited to announce that the European Huntington Association will be organising its 5th Biennal Conference in Bucharest, Romania, from September 25th-28th, 2025.
“Shaping our Future Together, We are the Change!” encapsulates the spirit of this year’s conference, uniting the HD community to exchange experiences, explore care and treatment advancements, and find strength in togetherness.
Whether you are a family member, healthcare professional, friend, or volunteer, the conference is open to all who are impacted by or interested in HD. Join us to connect, learn, and take part in shaping a brighter future for the HD community.
The Conference location will be at Ramada Plaza by Wyndham Bucharest Convention Center, 3 5 A Poligrafiei Ave, Bucharest, Romania 013704
Bucharest Henri Coandã International Airport
(OTP) offers direct flights to over 30 European countries, including key cities in Belgium, France, Germany, Italy, Netherlands, Portugal, Spain, the United Kingdom, and many others.The Ramada Plaza Bucharest Hotel, where the conference will be held, is located just 20 km from Henri Coandă International Airport (OTP). The most convenient way to reach the EHA Conference from the airport is by taking a taxi via the Bolt app, with an approximate cost of 10€ each way.
Kindly note that conference registration fees do not cover accommodation expenses. You are responsible for booking your own accomodation for the conference days.
Ramada Plaza (Conference Venue Hotel) – IMPORTANT Availability Notice:
NO availability for new room bookings for the night of September 25th.
For the nights between September 26th and 28th, preferred rates are no longer available due to limited remaining rooms.
From now on, their reservations department will confirm and offer the available rate at the time of the inquiry.
We’ve successfully secured a room block with the CityBookings chain (Arc de Triomphe and Piccolo Mondo hotels) offering special rates for our attendees. Here are the details:
Arc de Triomphe: 13 Double Rooms at 60 euros per night.
Piccolo Mondo: 9 Double Rooms at 80 euros per night.
You can find more information about the hotels on their website: https://arcdetriomphe.
Booking Instructions: Attendees can reserve these rooms by sending an email directly to sales@citybookings.ro, making sure to mention “EHA Conference” in their request.
Booking Deadline: These special rates and room availability are guaranteed until August 15th. It’s crucial that attendees book before this date.
Transport and Distance to Ramada Plaza: It’s important for attendees to know the proximity and transport options to the conference venue (Ramada Plaza).
Arc de Triomphe is approximately 3 km from Ramada Plaza. This is typically a 10 minute drive/taxi ride (BOLT). Public transport options include several bus lines (e.g., 331) that connect the area directly to near Ramada Plaza, taking around 25 minutes. (https://maps.app.goo.gl/
Piccolo Mondo is located very close to Arc de Triomphe Hotel (around 100m away, see the map…), so the distance and transport options to Ramada Plaza are very similar, approximately 3 km and a 10 minute drive/taxi (BOLT). Buses serving the Arc de Triomphe area will also be convenient, (e.g., 331) that connect the area directly to near Ramada Plaza, taking around 25 minutes. https://maps.app.goo.
The following options are also available:
If you’d like to support the EHA Conference and explore sponsorship opportunities, please contact us at astri@eurohuntington.org
We are proud to share all the details about the EHA Conference Agenda and the speakers in every session and activity. Here you can see all the speakers and the session description.
Session 8:00 – 9:00
Session 9:00 – 9:20
Session 9:20 – 9:50
Session 10:00 – 11:15
Session: The many faces of HD
Session: The many faces of HD
Session: The many faces of HD
Session: The many faces of HD
Session: The many faces of HD
Session 14:00 – 15:30
20:00
Session 8:00 – 9:00
Session 9:00 – 13:00
Session 9:00 – 13:00
Session 9:00 – 13:00
Session 9:00 – 16:10
Meet up at the front door of the conference venue and Rudy will lead the way through the beautiful landscape in Blankenberge. Bring comfortable shoes and clothes. No pressure to keep a high pace or go for a long distance. You can adapt to whatever level you want and are comfortable with. The important thing is to be active together and enjoy the fresh air and nice nature.
Astri Arnesen, President European Huntington Association, Andrè Willems, President Huntington Liga and Albert Counet, President Ligue Huntington Francophone Belge will welcome us all to Belgium and tell a bit about HD in Belgium and the role of the associations.
In 1993 the gene mutation causing Huntington’s Disease was identified. This was a major breakthrough in HD research and we all thought it would lead to the development of treatments relatively fast. Still we don’t have medicines approved but there has been made major steps forward. Where has the gene discovery lead us in terms of research, clinical care and how has it impacted HD family members?
Each HD family member has a unique experience and journey. How does it influence your life?
In this session we will have people tell about the choices they made in relation to have children. As HD is a hereditary disease it brings a lot of uncertainty on how and whether next generation will be affected. The gene discovery and medical
progress has provided us with several options to have children free of the HD gene. But is it a simple solution? Which attitudes and perceptions guide us when
making decisions?