3 August 2018

Accelerated evaluation of drug




The European Medicines Agency has acknowledged the huntingtin lowering drug, RG6042 (previously known as IONIS-HTTRx), as a possible therapy that […]

Continue Reading

25 April 2018

Amazing news – drug seems to improve symptoms




Yesterday Ionis Pharmaceutical presented new data from their Huntingtin lowering trial, IONIS-HTTRx. The data demonstrates a relationship between reduction of […]

Continue Reading

22 April 2018

Update message from the Roche team




On her way to board a flight to Los Angeles Mai-Lise Nguyen, Patient Partnership Director at Roche, sent an update […]

Continue Reading

16 April 2018

Wave partners with Takeda – HD research strengthened




The biotechnology company Wave Life Sciences strengthens their efforts in Huntington’s disease. In February they announced  their collaboration with Takeda, […]

Continue Reading

1 March 2018

More positive data from the Ionis/Roche trial released today




Today Ionis and Roche have announced more details from the Huntingtin lowering trial.  The initial results was released in December […]

Continue Reading

4 July 2017

Milano taking HD needs into universal design




On June 29th the the HD Associations AICH Milano and Huntington Onlus opened a very exciting and innovative Exhibition at […]

Continue Reading

9 May 2017

Business meeting 2016 minutes




To flip the page, use the arrows in the lower left corner

Continue Reading

9 May 2017

Presidents report 2016-18




To flip the page, use the arrows in the lower left corner Click here to open pdf

Continue Reading

25 April 2017

Letter from Russia: The HD movement is growing!




In early April the European Huntington Association, represented by President Astri Arnesen and board member Svein Olaf Olsen, met people […]

Continue Reading

6 April 2017

New drug for HD approved in USA




Exciting news for the Huntington’s disease (HD) community! The USA drug regulator, the FDA, has approved a new drug in […]

Continue Reading

Events

There are no upcoming events.

Funding Partner