Author: Astri Arnesen

Presidents report 2016-18

Click here to read the report

Letter from Russia: The HD movement is growing!

In early April the European Huntington Association, represented by President Astri Arnesen and board member Svein Olaf Olsen, met people impacted by Huntington’s disease (HD) in Russia. Here is a letter  from the inspiring meeting written by Astri Arnesen:   Russia, Moscow 12 points! This is not the final in the Eurovision Song Contest, but…
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New drug for HD approved in USA

Exciting news for the Huntington’s disease (HD) community! The USA drug regulator, the FDA, has approved a new drug in the treatment of HD. Its commercial name is Austedo, but the drug was previously known as Deutetrabenazine. It originates from Tetrabenazine which is used to treat chorea – the jerky movements – often found in HD patients.  This is…
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You are invited to the Papal audience the 18th of May!

Dear friend, It is with great pleasure and excitement that we invite you to join us at the Vatican for the first ever papal audience with the Huntington’s disease (HD) community on May 18, 2017. Do you want to join us?   →REGISTER HERE← Note: The audience is free of charge.    On this day,…
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Want to learn more about HD?

The Scottish Huntington`s Association in Collaboration With Stirling University are offering a webbased course in HD:  Huntington`s Disease; an enabling approach to supporting families.  You find more information about the wonderful opportunity here.

The Constitution

Adopted at the business meeting of the European Huntington Association held at Boldern, Zurich, Switzerland on the 22nd of September 2002. Signed  by Asuncion Martinez, then president of EHA.

October news from the Enroll-HD community

In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find the entire newsletter here.  In the newsletter you can read how Astri Arnesen, the president of EHA, and Svein Olaf Olsen talk openly about one of the most private decisions for HD families: being tested. They…
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