In early April the European Huntington Association, represented by President Astri Arnesen and board member Svein Olaf Olsen, met people impacted by Huntington’s disease (HD) in Russia. Here is a letter from the inspiring meeting written by Astri Arnesen: Russia, Moscow 12 points! This is not the final in the Eurovision Song Contest, but… Read more
Exciting news for the Huntington’s disease (HD) community! The USA drug regulator, the FDA, has approved a new drug in the treatment of HD. Its commercial name is Austedo, but the drug was previously known as Deutetrabenazine. It originates from Tetrabenazine which is used to treat chorea – the jerky movements – often found in HD patients. This is… Read more
Dear friend, It is with great pleasure and excitement that we invite you to join us at the Vatican for the first ever papal audience with the Huntington’s disease (HD) community on May 18, 2017. Do you want to join us? →REGISTER HERE← Note: The audience is free of charge. On this day,… Read more
The Scottish Huntington`s Association in Collaboration With Stirling University are offering a webbased course in HD: Huntington`s Disease; an enabling approach to supporting families. You find more information about the wonderful opportunity here.
In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find the entire newsletter here. In the newsletter you can read how Astri Arnesen, the president of EHA, and Svein Olaf Olsen talk openly about one of the most private decisions for HD families: being tested. They… Read more
Postponed due to COVID-19. Every second year European Huntington’s Disease Network (EHDN) hosts one of the world’s largest conferences dedicated solely to Huntington’s disease (HD). In 2020, the EHDN Plenary Meeting was supposed to take place… Read more