Author: Maiken Arnesen

Sleep better at night

Many people with Huntington’s disease have trouble sleeping. Managing or treating the problems directly may be beneficial. Find some simple tips on how to improve sleep below. Short-term sleep deprivation has no lasting damage, but it impacts mood. Without enough sleep, people become irritable, unreasonable and short-tempered. At HDBuzz we can read that people with Huntington frequently suffer from sleep abnormalities and…
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Safety with style

Ribcap was formed over 10 years ago to provide protective headgear that works to combat various neurological conditions – without compromising personal style. The headgear is designed for everyone facing all sorts of life challenges.

Latest Huntington News!

The EHDN Newsletter is here! Get updated on ongoing trials and Enroll-HD, read about Rob’s first meeting with the Huntington community and the situation for Huntington families in Venezuela. CONTENT Page 2 The Huntington’s disease minipig, Adela, is 10 Page 3 Giving families a place, a face and a voice Page 4 Update: Clinical trials…
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We want your poster!

Do you have a good idea? Have you conducted interesting research? Or learned anything meaningful through your work? We want to know about it! Bring your poster to EHA Conference 2019! How? 1) Write a short description of your poster and send it to info@eurohuntington.org.2) Print your poster and bring it to our conference in…
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Exhibit your pictures during our conference!

Do you have a camera? Or maybe a friend that has one? Take part in our photo exhibition during our conference! We want people to see the many faces of Huntington’s disease! Everyone that’s affected by Huntington’s disease can participate: If you are a family member of someone with the disease, if you are affected…
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Why you should join our conference!

Have you heard about our conference but not yet decided if you want to go? Cristina Ferreira went all by her self from Portugal to Bulgaria to join us in 2017. Read her story: I come from a Portuguese Huntington’s disease family. My mother was diagnosed with Huntington’s in 2012. At this point she was already…
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May is Huntington’s disease awareness month!

Over the last years, May has been Huntington Disease Awareness Month. Starting off at the Huntington’s Society of Canada, Awareness Month and the #LightItUp4HD campaign has grown into a global movement. During May, buildings, monuments and statues worldwide will be lit up in blue and purple. Blue to raise awareness of Huntington’s disease, purple of Juvenile…
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Video – Latest research news!

The video from CHDI’s therapeutics conference is here! This year, the conference was bigger and more exciting than ever. Learn more about the latest research and treatment. Watch the video below! The conference is the biggest annual gathering of Huntington’s disease researchers. At the 14th Therapeutics Conference, 360 researchers participated. During the gathering in Palm…
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April Newsletter from EHA

Read all about the HD therapeutic conference in Palm Springs, lates news from Roche, the upcoming EHA conference in Bucharest and more. Find the newsletter here: The voice of HD

Bright Lights Big City: HD-COPE descends upon New York City

The HD-COPE committee held its second annual meeting in the Big Apple, February 21-24, 2019. This year the committee welcomed members from Africa, Australia, China and South America. Now making it an international power house in the HD community.  Written by Dina de Sousa, member of HD-COPE HD-COPE, the Huntington’s Disease Coalition for Patient Engagement, was…
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