19 November 2018

Italian Welfare Award for Huntington Onlus!




Huntington Onlus, the Italian network of Huntington Disease, was given the annual volunteer award by Lombardy Region Authorities. With more [...]

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23 October 2018

Letter from Pavla Šašinková: Amazing donations




This summer I got an unexpected e-mail. Bea de Schepper had collected medical equipment, stored it in her house in […]

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25 September 2018

How to start your own support group – video!




Huntington’s disease can be a complex disease to live with and it can be even more complicated to live as [...]

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20 September 2018

Breaking! NEW VARIANT OF JHD DISCOVERED – video!




New findings indicate that Juvenile Huntington's should be separated into two distinct categories, which in turn may be treated differently. [...]

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18 September 2018

Two important meetings in Vienna




From 13thto 16thof September, to important meetings took place in Vienna: the EHA Business Meeting and the EHDN Plenary Meeting. [...]

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29 August 2018

Race for awareness – video!




18th of August the cycling race Géants Des Ardennes took place in Liège, Belgium. With the help of team leader Jeroen de [...]

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16 August 2018

Learn more about patient advocacy and how to influence!




Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate in […]

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26 July 2018

EFNA Survey: need for increased awareness




A newly published survey conducted by EFNA, shows that young Europeans with neurological conditions lives with a fear of isolation […]

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13 June 2018

An exciting new therapy




Wave is currently testing a new treatment known as ‘Precision medicine’. The drug only targets the disease-causing protein and leaves [...]

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8 June 2018

A letter from Roche




Roche Pharmaceuticals is currently working on their Huntingtin Lowering drug, RG6042 (formerly known as IONIS-HTTRx). In the letter Patient Partnership […]

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