17 March 2018

You are invited to our photo contest!

To all huntingtonians, You are invited to our photo contest! Send us your photo of HD and YOU! The competition […]

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6 March 2018

Research news from EHDN

Read about the Fellowship Programme, get an update on clinical trials, get to know Ed Wild better and get dates […]

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5 March 2018

Fellowship Programme – Apply before 27 April 2018!

The Fellowship Programme in Huntington’s Disease is now open for the 2018 round of applications. This article was first published […]

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28 February 2018

Rare Disease Day

Today is the eleventh international Rare Disease Day coordinated by EURORDIS. This year’s theme is research. With these aspects in […]

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16 January 2018

Meeting with Roche

When the groundbreaking results of the Huntingtin lowering trial, IONIS-HTTRx, was announced the European Huntington Association travelled to Basel to […]

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31 December 2017

Happy New Year

As a New Year approach people tend to reflect over the year that has been. And we in the European […]

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31 December 2017

Fundamental right to healthcare and treatment

In late November the MEP Interest Group on Brain, Mind and Pain in partnership with the European Academy of Neurology […]

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22 December 2017

Christmas card from Roche

This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the […]

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15 December 2017

My Voice Matters! A successful initiative on value added medicines

Photo: Marc-Alexander MAHL, President, Medicines for Europe;  Astri ARNESEN, President, European Huntington Association; Donna WALSH, Executive Director, European Federation of […]

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11 December 2017

Groundbreaking results!

This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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