18 September 2018

Two important meetings in Vienna




From 13thto 16thof September, to important meetings took place in Vienna: the EHA Business Meeting and the EHDN Plenary Meeting. [...]

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29 August 2018

Race for awareness – video!




18th of August the cycling race Géants Des Ardennes took place in Liège, Belgium. With the help of team leader Jeroen de [...]

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16 August 2018

Learn more about patient advocacy and how to influence!




Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate in […]

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26 July 2018

EFNA Survey: need for increased awareness




A newly published survey conducted by EFNA, shows that young Europeans with neurological conditions lives with a fear of isolation […]

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13 June 2018

An exciting new therapy




Wave is currently testing a new treatment known as ‘Precision medicine’. The drug only targets the disease-causing protein and leaves [...]

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8 June 2018

A letter from Roche




Roche Pharmaceuticals is currently working on their Huntingtin Lowering drug, RG6042 (formerly known as IONIS-HTTRx). In the letter Patient Partnership […]

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19 May 2018

You are invited to Vienna!




In September the European Huntington Association is arranging their Business Meeting in Vienna. This year the association wants to encourage […]

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11 May 2018

May is Huntington Disease Awareness Month




Over the last years, May have been Huntington Disease Awareness Month. Thanks to the Huntington Society of Canada buildings, monuments [...]

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24 April 2018

Huge progress for patient representation




The first weekend in February was historical: it was the first meeting of the Huntington’s Disease Coalition for Patient Engagement […]

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13 April 2018

Join us – HD on the Bike




Join us in creating awareness! The 18th of August the European Huntington Association will bike for Huntington's Disease. And we [...]

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