15 December 2017

My Voice Matters! A successful initiative on value added medicines




Photo: Marc-Alexander MAHL, President, Medicines for Europe;  Astri ARNESEN, President, European Huntington Association; Donna WALSH, Executive Director, European Federation of […]

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11 December 2017




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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29 November 2017

LIRH Foundation Annual Conference




Scientific Research on Rare Diseases and Therapeutic Perspectives on Huntington’s Disease   When it comes to Huntington’s disease and clinical […]

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2 November 2017

Update on the situation in Malta




On the 16th of October EHA and LIRH met Huntington’s disease families in Malta.  The formal gathering of Huntington’s disease […]

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24 October 2017




In the summer of 2018 the European Huntington Association wants to create awareness around Huntington’s disease. And we want to […]

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24 October 2017




EURORDIS, the European Organisation for Rare Diseases is launching a new project called Rare Barometer Voices. This initiative aims to […]

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6 October 2017

Thank you, Marjorie!




On this day, 6th of October 1917, Marjorie Greenblatt was born in Atlantic City, New Jersey. For many years she […]

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3 October 2017

A promising future for Malta




The circumstances for people affected by Huntington’s in Malta are poor. However, the situation might change. This October EHAs Vice […]

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28 September 2017

Summary of the Conference Stronger Together




In September around 250 people gathered in Sofia, Bulgaria. They came from 25 different countries from all over Europe – […]

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19 September 2017

A new coalition to give families a impactful voice




The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to […]

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