One year anniversary!

One year ago Alzbeta Mühlbäck and the European Huntington Association established Ask the Doctor. Since then people have been asking questions about Huntington’s disease from all over the world. The idea behind Ask the Doctor was to provide a low threshold platform where questions related to Huntington’s Disease (HD) could Read more…

Rare Disease Day

Today is the eleventh international Rare Disease Day coordinated by EURORDIS. This year’s theme is research. With these aspects in mind, we would like to draw attention to the progress in Huntington research and patient advocacy. The patient community needs researchers and researchers need patients. As highlighted on Rare Disease Read more…

Meeting with Roche

When the groundbreaking results of the Huntingtin lowering trial, IONIS-HTTRx, was announced the European Huntington Association travelled to Basel to meet Roche Pharmaceuticals. Roche have taken over the trial and is now planning the next step. Roche have put together their own team of around 20 people that are working Read more…

Happy New Year

As a New Year approach people tend to reflect over the year that has been. And we in the European Huntington Association are no different. This year is characterized by many things. If we look outside our own little community, the world “ may seem an unfriendly and sinister place” Read more…