31 December 2017

Happy New Year




As a New Year approach people tend to reflect over the year that has been. And we in the European […]

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31 December 2017

Fundamental right to healthcare and treatment




In late November the MEP Interest Group on Brain, Mind and Pain in partnership with the European Academy of Neurology […]

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22 December 2017

Christmas card from Roche




This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the […]

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15 December 2017

My Voice Matters! A successful initiative on value added medicines




Photo: Marc-Alexander MAHL, President, Medicines for Europe;  Astri ARNESEN, President, European Huntington Association; Donna WALSH, Executive Director, European Federation of […]

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11 December 2017

Groundbreaking results!




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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29 November 2017

LIRH Foundation Annual Conference




Scientific Research on Rare Diseases and Therapeutic Perspectives on Huntington’s Disease   When it comes to Huntington’s disease and clinical […]

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2 November 2017

Update on the situation in Malta




On the 16th of October EHA and LIRH met Huntington’s disease families in Malta.  The formal gathering of Huntington’s disease […]

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24 October 2017

HD on the Bike




In the summer of 2018 the European Huntington Association wants to create awareness around Huntington’s disease. And we want to […]

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24 October 2017

Use your voice: Rare Barometer Voices




EURORDIS, the European Organisation for Rare Diseases is launching a new project called Rare Barometer Voices. This initiative aims to […]

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6 October 2017

Thank you, Marjorie!




On this day, 6th of October 1917, Marjorie Greenblatt was born in Atlantic City, New Jersey. For many years she […]

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