Author: Phylis Kitema

What does COVID-19 mean for Huntington’s disease families and HD research?

What does COVID-19 mean for Huntington’s disease families and HD research? From: HDbuzz COVID-19, short for coronavirus disease 2019, has taken the world by storm in almost every sense – many people have been infected with the SARS-CoV-2 virus, it’s created shopping pandemonium in stores, and many people are isolated at home. But behind that…
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Huntington’s disease and the COVID-19 pandemic – a difficult combination

On monday, the 6th of April, 2020, The European Huntington Association (EHA) and the European Reference Network for Rare Neurological Diseases  (ERN-RND) arranged an open webinar titled “Huntington´s Disease and the COVID-19 Pandemic – a difficult situation”   The organisers of the webinar acknowledges that COVID-19 – with all the restrictions it has, can cause a lot of…
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COVID-19 Info and advice

What is COVID-19? COVID-19, short for coronavirus disease 2019, is an infection caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). SARS-CoV-2 is a newly identified pathogen that has not previously been seen in humans and is highly contagious. Though it belongs to the same category of viruses as SARS coronavirus (SARS-CoV) and influenza viruses, SARS-CoV-2 is a different…
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Excersice – At home

The European Huntington’s Disease Network are asking the HD Community to stay safe and they are sharing links to remain active while at home. Please see their message below: We strongly encourage EHDN members to follow their local institutional or governmental policy for the current COVID-19 advisory. Please ensure the safety and security of yourself, family, friends…
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Mental Health & COVID 19

How your mental health might be affected The spread of coronavirus is a new and challenging event. Some people might find it more worrying than others. Try to remember that medical, scientific and public health experts are working hard to contain the virus. Most people’s lives will change in some way over a period of…
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Webinar: Huntington’s disease and COVID-19 – a difficult combination

We understand that the COVID-19 pandemic can cause a lot of strain, stress and isolation on Huntington’s disease (HD) families, patients and relatives. All the restrictions imply big changes in daily life and the routines are hard to maintain. We hear that families struggle, feel scared and isolated. In order to support you in this…
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Staying well when social distancing

The outbreak of coronavirus disease 2019 (COVID-19) may be stressful for people. Fear and anxiety about a disease can be overwhelming and cause strong emotions in adults and children. Coping with stress will make you, the people you care about, and your community stronger. Everyone reacts differently to stressful situations.  Webinar In order to support you…
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Update on GENERATION HD1 study

The enrolment in the Phase III GENERATION HD1 study has been increased from 660 to 801 participants worldwide.This change does not impact participants already enrolled in the study, but it allows for additional patients to enrol in the three existing study groups. By enrolling more participants, Roche and Genentech will receive more data and increase…
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