Free of charge | Open to everyone | Register in advance
If you are living with a lot of stress, it can be difficult to calm your mind. However, it is important to take care of yourself – especially if you are taking care of others as well.
In this webinar series, Mari Aanensen at Mindfulness Kristiansand will give an introduction to mindfulness; what it is, how it works, why it’s relevant for people from Huntington families and how you can get started.
The two sessions will include presentations, exercises and opportunities for reflection/dialogue. You will be invited to explore some simple mindfulness practices together with the other attendees. In addition, you will have the opportunity to continue practicing at home in between the two sessions.
Topics we will explore:
What is mindfulness
Research – what do we know
How mindfulness helps us cope with stress, worry and anxiety
The benefits of being kinder to ourselves
Simple ways to get started
WHEN? 2. & 9. December
/ 19:00 Central European Time
/ 18:00 in England, Portugal
/ 20:00 in Finland, Greece
REGISTRATION: REGISTER HERE!
Free of charge | Open to everyone | Register in advance
Despite Covid-19, a lot of progress have been made in Huntington’s disease research.
With the help of Prof. Anne Rosser, Dr. Ralf Reilmann and Alzbeta Mühlbäck, MD, we will summarise the biggest achievements in 2020 and make some predictions for 2021. Ask them your question and celebrate a new year together with us!
WHEN? 16. December
/ 19:00 Central European Time
/ 18:00 in England, Portugal
/ 20:00 in Finland, Greece
- Ann Rosser is Professor of Clinical Neuroscience, Division of Psychological Medicine and Clinical Neurosciences. She’s also chair of the European Huntington’s Disease Network (EHDN).
- Alzbeta Mühlbäck is a Medical Doctor by background specialised in neuropsychiatry. She’s head of a German Huntington’s disease clinic, Isar-Amper-Klinikum Klinik Taufkirchen, and a Executive Committee member of EHDN.
- Ralf Reilmann is a Medical Doctor by background. He’s the Founding Director of the George Huntington Institut in Germany, devoted to clinical and preclinical research in Huntington’s disease. Reilmann is also a Executive Committee member of EHDN.
WHAT?
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
WHY?
Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.
WHO?
Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage. 2021 is no exception.
Find information about the thousands of events happening around the world on the last day of February here.
Free of charge | Primarily for 18-35 years-old
Join HDYO’s Virtual Congress for young adults aged 18-35 impacted by Huntington’s Disease!
For two days, insightful talks, sharing, research updates, peer support and fun will take place online! This event is aimed primarily at young adults aged 18-35 impacted by Huntington’s Disease from families around the world. However as the event is now virtual, HDYO are welcoming family members of all ages. It’s also for professionals and pharmaceutical industry partners who work with the Huntington community.
For more information, visit: www.hdyocongress2021.com
Every second year European Huntington’s Disease Network (EHDN) hosts one of the world’s largest conferences dedicated solely to Huntington’s disease (HD). In 2021, the EHDN Plenary Meeting will take place in Bologna, Italy September 10-12.
The Plenary Meeting is open to clinicians, scientists, EHA delegates and members of families affected by Huntington’s disease (HD). You can learn more about recent advances in research and attendees have the opportunity to meet people in the field of HD studies in more informal settings.
Usually, EHDN members are entitled to have their travel and accommodation costs reimbursed up to a maximum of 400 EUR for travels within Europe and 600 EUR for travels from non-European countries. Costs above these amounts cannot be covered by the EHDN. Reimbursement forms need to be submitted after the Plenary Meeting.
Timelines
Abstract submission: May – June 2021
Registration: May – July 2021
More details will follow.