Calendar

Sep
29
Tue
WEBINAR | How Can We Develop and Implement Evidence Based Rehabilitation in Rare Disorders?
Sep 29 @ 3:00 pm – 4:00 pm
WEBINAR | How Can We Develop and Implement Evidence Based Rehabilitation in Rare Disorders?

Free of charge | Open to everyone | 15:00 CEST

Speaker: Hortensia Gimeno

Gimeno is Clinical Research Fellow at NIHR and PhD Candidate at King’s College London and Consultant Occupational Therapist at Guy’s and St Thomas’ NHS Foundation Trust.

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This is part of a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Oct
8
Thu
WEBINAR | Oral Care & Huntington’s: Keeping the mouth healthy
Oct 8 @ 11:00 am – 12:30 pm
WEBINAR | Oral Care & Huntington's: Keeping the mouth healthy @ ONLINE

Free of charge | Open to everyone | Online

Together with the Huntington´s Disease Association of Cyprus and Annette Carlsson, we’re running a webinar on how to maintain a healthy mouth and strong teeth in people with Huntington’s disease.

During the webinar we will discuss how to manage oral health and demonstrate several tools that will make oral care easier in daily life. It is free of charge and open to everyone (both professionals and family members/carers).

Background:

One of the corner stones for Quality of Life is good oral health. For people with Huntington’s there are many problems that affects the oral health. Dry mouth as well as blisters and sores can cause pain and difficulties in eating, speaking and to perform oral care.  Toothache and lack of teeth affects even the mental status. Swallowing difficulties increase the risk of aspiration. It is of extra importance to maintain a good oral health and thereby minimize the risk of injurious bacteria reaching the lungs. 

Speaker: Annette Carlsson

Annette is a Dental hygienist at the Mun-H-Center and Hospital dentistry in Göteborg, Sweden. She’s also a board member of the Swedish Huntington Association.

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WHEN: 8. October, 11:00-12:30 CEST
PLATFORM: Zoom 
REGISTRATION: REGISTER HERE

 

Oct
13
Tue
WEBINAR | Diagnostic Algorithm for Childhood Onset Chorea
Oct 13 @ 3:00 pm – 4:00 pm
WEBINAR | Diagnostic Algorithm for Childhood Onset Chorea

Free of charge | Open to everyone | 15:00 CEST

Chorea denotes movement disorders. The term is derived from the Ancient Greek “choreia” meaning “dance”. The most common inherited cause of chorea is Huntington’s disease, which formerly was called Huntington’s chorea. However, it was renamed because of the many important, non-movement features characterising the disease.

Speaker: Juan Dario Ortigoza-Escobar

Ortigoza-Escobar is a pediatric neurologist from the Hospital Sant Joan de Déu in Barcelona, Spain. He is specialised in movement disorders such as dystonia, Parkinsonisms, chorea, tremors, myoclonias, tics/Tourette syndrome and deep brain stimulation.

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This is part of a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).