Calendar

Sep
29
Tue
WEBINAR | How Can We Develop and Implement Evidence Based Rehabilitation in Rare Disorders?
Sep 29 @ 3:00 pm – 4:00 pm
WEBINAR | How Can We Develop and Implement Evidence Based Rehabilitation in Rare Disorders?

Free of charge | Open to everyone | 15:00 CEST

Speaker: Hortensia Gimeno

Gimeno is Clinical Research Fellow at NIHR and PhD Candidate at King’s College London and Consultant Occupational Therapist at Guy’s and St Thomas’ NHS Foundation Trust.

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This is part of a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Oct
13
Tue
WEBINAR | Diagnostic Algorithm for Childhood Onset Chorea
Oct 13 @ 3:00 pm – 4:00 pm
WEBINAR | Diagnostic Algorithm for Childhood Onset Chorea

Free of charge | Open to everyone | 15:00 CEST

Chorea denotes movement disorders. The term is derived from the Ancient Greek “choreia” meaning “dance”. The most common inherited cause of chorea is Huntington’s disease, which formerly was called Huntington’s chorea. However, it was renamed because of the many important, non-movement features characterising the disease.

Speaker: Juan Dario Ortigoza-Escobar

Ortigoza-Escobar is a pediatric neurologist from the Hospital Sant Joan de Déu in Barcelona, Spain. He is specialised in movement disorders such as dystonia, Parkinsonisms, chorea, tremors, myoclonias, tics/Tourette syndrome and deep brain stimulation.

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This is part of a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Oct
20
Tue
WEBINAR | Recommendations for Physical Therapy for Huntington’s disease
Oct 20 @ 3:00 pm – 4:00 pm
WEBINAR | Recommendations for Physical Therapy for Huntington’s disease

Free of charge | Open to everyone | 15:00 CEST

Speaker: Bernhard Landwehrmeyer

If you have attended any Huntington’s disease conference, congress or seminar, you have probably seen Bernhard Landwehrmeyer there. He is one of the founders of the European Huntington’s Disease Network (EHDN). Since 2011, Landwehrmeyer is the Principal Investigator of Enroll-HD, a worldwide, observational Huntington disease study for Huntington families. He also directs the Huntington’s disease center at Ulm, a center providing genetic counselling, as well as rehabilitation for Huntington affected families along with basic and translational science.

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This is part of a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Dec
1
Tue
WEBINAR | Functional Movement Disorders: a Diagnostic Guide
Dec 1 @ 3:00 pm – 4:00 pm
WEBINAR | Functional Movement Disorders: a Diagnostic Guide

Free of charge | Open to everyone | 15:00 CET

Speaker: Christos Ganos

Ganos is a neurologist and senior lecturer at the Movement Disorders and Neuromodulation Unit at the Charité, University Medicine in Berlin. His clinical and research focus is on movement and neurodegenerative disorders.

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This is part of a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).