Category: Support

Caregivers of Huntington’s Patients Voice Frustrations with Doctors and Health System

Over on  Magdalena Kegelby reports that caregivers of  people with Huntington’s disease describe themselves as invisible patients in a healthcare system they are profoundly disappointed with, according to a study in the journal Psychiatra Polska. While the study was done in Poland, similar findings in both the U.S. and U.K. indicate that changes in medical…
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The Youth Connection – HDYO

Life for a young person in an HD family can be tough. At home, there may be responsibilities such as helping with household chores or being involved in caregiving. Outside the home, there’s the constant feeling of being an outsider. While other teens and young adults focus on studies and fun, youth in HD families…
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