Category: Events

Learn more about patient advocacy and how to influence!

Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate in EFNA’s workshop! Register before September 21st.  Register here. The  European Federation  of  Neurological Associations  (EFNA)  is an  umbrella  group representing 20 pan-European neurology patient groups – including the European Huntington Association. There’s a consensus among EFNA’s members that…
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You are invited to Vienna!

In September the European Huntington Association is arranging their Business Meeting in Vienna. This year the association wants to encourage as many family members as possible to participate. REGISTER HERE The EHA Business Meeting is taking place one day prior to the EHDN Plenary Meeting. The Business Meeting will happen 13 September and the EHDN…
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May is Huntington Disease Awareness Month

Over the last years, May have been Huntington Disease Awareness Month. Thanks to the Huntington Society of Canada buildings, monuments and statues has been lit up in blue and purple to raise awareness for Juvenile HD (in purple) and HD (in blue). Light up your home and share your photos on social media using #LightItUp4HD.…
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Join us – HD on the Bike

Join us in creating awareness! The 18th of August the European Huntington Association will bike for Huntington's Disease. And we invite all of you to join us. Everyone can join: if you’re directly affected by the disease, if you have a friend, a husband or a wife that’s affected by the disease, if you are…
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You are invited to our photo contest!

To all huntingtonians, You are invited to our photo contest! Send us your photo of HD and YOU! The competition is open to all Huntingtonians affected by the disease themselves or through their work. Deadline: July 31. 1) Take a photo of something related to  your HD life. 2) Write an accompanying text (for instance your thoughts,…
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Huntington Research and Progress

Today is the eleventh international Rare Disease Day coordinated by EURORDIS. This year’s theme is research. With these aspects in mind, we would like to draw attention to the progress in Huntington research and patient advocacy. The patient community needs researchers and researchers need patients. As highlighted on Rare Disease Day’s website: “The patient community…
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Happy New Year

As a New Year approach people tend to reflect over the year that has been. And we in the European Huntington Association are no different. This year is characterized by many things. If we look outside our own little community, the world “ may seem an unfriendly and sinister place” to quote Lemony Snicket. However…
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HD on the Bike

In the summer of 2018 the European Huntington Association wants to create awareness around Huntington’s disease. And we want to do it in a positive and fun way. We therefore invite all of you to join us in a biking race. We will participate as Huntingtonians United under the slogan HD on the Bike. And…
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Summary of the Conference Stronger Together

In September around 250 people gathered in Sofia, Bulgaria. They came from 25 different countries from all over Europe – and even from Oman. The crowd consisted of old people, young people, extroverts, introverts, boys, girls and everything in between. But they all had one thing in common: Huntington’s disease. The 250 huntingtonians had a…
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EHA Conference: Updated program

The 22-24th of September 2017 the European Huntington Association is holding a conference in Sofia, Bulgaria. It is called Stronger Together and it aims to build a bridge; a bridge between all those personally and professionally impacted by Huntington’s disease – so that we can be stronger together. We are now proud to announce our updated program!…
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