In early April the European Huntington Association, represented by President Astri Arnesen and board member Svein Olaf Olsen, met people impacted by Huntington’s disease (HD) in Russia. Here is a letter from the inspiring meeting written by Astri Arnesen: Russia, Moscow 12 points! This is not the final in the Eurovision Song Contest, but…
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Dear friend, It is with great pleasure and excitement that we invite you to join us at the Vatican for the first ever papal audience with the Huntington’s disease (HD) community on May 18, 2017. Do you want to join us? →REGISTER HERE← Note: The audience is free of charge. On this day,…
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The 22-24th of September 2017 the European Huntington Association (EHA) is arranging a conference in Sofia, Bulgaria. It aims to give information about Huntington’s disease (HD) and is open to all our friends and members – to professionals and family members impacted by HD. Our speakers will look at a lot of interesting and important topics. During…
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The Italian League for Research on Huntington and related diseases Foundation (LIRH Foundation) had their annual meeting in Rome 3rd of December 2016 – the same date as the International Day of People with a Disability. The meeting was open to all interested families and professionals. The meeting was given the title: HD Research borders:…
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WODC, the largest and most established industry event on rare diseases and orphan drugs in Europe, is dedicated to fostering partnerships between industry, governments, payers, investors and patients through patient support groups. Regardless of whether your interest lies in research, clinical development, patient access, global pricing and reimbursement, or just to engage with patient advocacy…
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The Congress “On care in Huntington’s disease: the need for evidence” for care professionals, focuses on recent (evidence-based) developments in the field of care for people with Huntington’s disease. During this interactive congress, outcomes of research, acquired in the field of Huntington’s disease, will be exchanged, in order to allow us to come to the…
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European Huntington’s Disease Network (EHDN) – Plenary Meeting, September 16-18, 2016, The Hague, The Netherlands Join us via: http://www.euro-hd.net/html/ehdn2016/registration Deadline for registration July 31 Click here to view the programme for the conference EHA Business Meeting for all Members will also take place at The Hague on the 15th of September. Please sign-up for…
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A Huntington’s Disease Public Awareness Day took place in Copenhagen on Saturday, May 28TH. The event was part of the Together Under the Umbrella awareness campaign for brain disorders the European Federation of Neurological Associations [EFNA], organised this information day, coinciding with the annual congress of the European Academy of Neurology. The event was attended…
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Sussex Healthcare will run a certificated course on Huntington’s Disease in the UK on the 21st and 22nd October 2016. This is a unique opportunity for you to hear from some of the leading scientists, doctors, nurses and other professionals working in this area and meeting the needs of those living with Huntington’s. This will…
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The Bulgarian Huntington Association has made available the programme for their 1st Workshop for Professionals, which will be held from the 21st- 22nd May 2016 at the Best Western Expo Hotel, Sofia. Download the programme here You can contact BHA at info@huntington.bg or visit their website at http://huntington.bg.
