1 March 2018

More positive data from the Ionis/Roche trial released today




Today Ionis and Roche have announced more details from the Huntingtin lowering trial.  The initial results was released in December […]

Continue Reading

6 July 2018

Huntington’s Disease Youth Organization needs you!




HDYO is looking to hold a review meeting on the future direction of the Young Adult Working Group of EHDN […]

Continue Reading

13 June 2018

An exciting new therapy




Wave is currently testing a new treatment known as ‘Precision medicine’. The drug only targets the disease-causing protein and leaves [...]
Continue Reading

8 June 2018

A letter from Roche




Roche Pharmaceuticals is currently working on their Huntingtin Lowering drug, RG6042 (formerly known as IONIS-HTTRx). In the letter Patient Partnership […]

Continue Reading

19 May 2018

You are invited to Vienna!




In September the European Huntington Association is arranging their Business Meeting in Vienna. This year the association wants to encourage […]

Continue Reading

11 May 2018

May is Huntington Disease Awareness Month




Over the last years, May have been Huntington Disease Awareness Month. Thanks to the Huntington Society of Canada buildings, monuments [...]
Continue Reading

25 April 2018

Amazing news – drug seems to improve symptoms




Yesterday Ionis Pharmaceutical presented new data from their Huntingtin lowering trial, IONIS-HTTRx. The data demonstrates a relationship between reduction of […]

Continue Reading

24 April 2018

Huge progress for patient representation




The first weekend in February was historical: it was the first meeting of the Huntington’s Disease Coalition for Patient Engagement […]

Continue Reading

22 April 2018

Update message from the Roche team




On her way to board a flight to Los Angeles Mai-Lise Nguyen, Patient Partnership Director at Roche, sent an update […]

Continue Reading

16 April 2018

Wave partners with Takeda – HD research strengthened




The biotechnology company Wave Life Sciences strengthens their efforts in Huntington’s disease. In February they announced  their collaboration with Takeda, […]

Continue Reading

10 April 2018

One year anniversary!




One year ago Alzbeta Mühlbäck and the European Huntington Association established Ask the Doctor. Since then people have been asking […]

Continue Reading

Follow Us

  • Vimeo

Funding Partners