16 January 2018

Meeting with Roche

When the groundbreaking results of the Huntingtin lowering trial was announced, the European Huntington Association travelled to Basel to meet […]

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31 December 2017

Fundamental right to healthcare and treatment

In late November the MEP Interest Group on Brain, Mind and Pain in partnership with the European Academy of Neurology […]

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15 December 2017

My Voice Matters! A successful initiative on value added medicines

Photo: Marc-Alexander MAHL, President, Medicines for Europe;  Astri ARNESEN, President, European Huntington Association; Donna WALSH, Executive Director, European Federation of […]

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11 December 2017

Groundbreaking results!

This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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29 November 2017

LIRH Foundation Annual Conference

Scientific Research on Rare Diseases and Therapeutic Perspectives on Huntington’s Disease   When it comes to Huntington’s disease and clinical […]

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2 November 2017

Update on the situation in Malta

On the 16th of October EHA and LIRH met Huntington’s disease families in Malta.  The formal gathering of Huntington’s disease […]

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24 October 2017

HD on the Bike

In the summer of 2018 the European Huntington Association wants to raise awareness for Huntington’s disease. And we want to […]

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24 October 2017

Use your voice: Rare Barometer Voices

EURORDIS, the European Organisation for Rare Diseases is launching a new project called Rare Barometer Voices. This initiative aims to […]

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3 October 2017

A promising future for Malta

The circumstances for people affected by Huntington’s in Malta are poor. However, the situation might change. This October EHAs Vice […]

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28 September 2017

Summary of the Conference Stronger Together

In September around 250 people gathered in Sofia, Bulgaria. They came from 25 different countries from all over Europe – […]

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