16 January 2018

Meeting with Roche




When the groundbreaking results of the Huntingtin lowering trial was announced, the European Huntington Association travelled to Basel to meet […]

Continue Reading

31 December 2017

Fundamental right to healthcare and treatment




In late November the MEP Interest Group on Brain, Mind and Pain in partnership with the European Academy of Neurology […]

Continue Reading

15 December 2017

My Voice Matters! A successful initiative on value added medicines




Photo: Marc-Alexander MAHL, President, Medicines for Europe;  Astri ARNESEN, President, European Huntington Association; Donna WALSH, Executive Director, European Federation of […]

Continue Reading

11 December 2017

Groundbreaking results!




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

Continue Reading

29 November 2017

LIRH Foundation Annual Conference




Scientific Research on Rare Diseases and Therapeutic Perspectives on Huntington’s Disease   When it comes to Huntington’s disease and clinical […]

Continue Reading

2 November 2017

Update on the situation in Malta




On the 16th of October EHA and LIRH met Huntington’s disease families in Malta.  The formal gathering of Huntington’s disease […]

Continue Reading

24 October 2017

HD on the Bike




In the summer of 2018 the European Huntington Association wants to raise awareness for Huntington’s disease. And we want to […]

Continue Reading

24 October 2017

Use your voice: Rare Barometer Voices




EURORDIS, the European Organisation for Rare Diseases is launching a new project called Rare Barometer Voices. This initiative aims to […]

Continue Reading

3 October 2017

A promising future for Malta




The circumstances for people affected by Huntington’s in Malta are poor. However, the situation might change. This October EHAs Vice […]

Continue Reading

28 September 2017

Summary of the Conference Stronger Together




In September around 250 people gathered in Sofia, Bulgaria. They came from 25 different countries from all over Europe – […]

Continue Reading

Follow Us

  • Vimeo

Events

  1. HD-COPE Training

    February 2 - February 3

Funding Partners