From Russia to Rome – video interview
During the Audience with Pope Francis the 18th of May, the European Huntington Association met Yulia Tsvetkova in Rome. We talked about Huntington’s disease (HD), the event and the situation in Russia today. Watch the video interview below! Yulia Tsvetkova is from Russia. She currently lives in Moscow, but the day EHA met her she […]
The day Pope Francis met Huntington’s disease
The 18th of May people gathered in the Vatican. It was an event unlike any other: the largest global gathering of the Huntington’s Disease community. Twenty-six countries sat side by side: from New Zealand to Norway, from Brazil to Poland. Why? To meet one man: Pope Francis. And to tell the world that Huntington’s disease […]
New opportunities in Malta
When the Huntington’s Disease (HD) Therapeutics Conference took place in Malta late April, the European Huntington Association used the opportunity to meet two HD family members. They told us about the situation HD families in Malta faces today. Stigma It is a small island and it is densely populated. From a population of 420.000 people […]
Find the program here!
The 22-24th of September 2017 the European Huntington Association (EHA) is holding a conference in Bulgaria. Around 250 will join us in Sofia – and we look forward to it! You can find the program here: Program for Sofia Conference: Stronger Together During our conference you will get the opportunity to meet representatives from the pharma […]
2018 | Business meeting minutes
General Assembly Minutes General Assembly 2021 Find here the minutes form our General Assembly meeting in Amsterdam, 2021 Minutes of the Committee Meeting
Presidents Report
Presidents Report EHA 2021 – 2022 Together – forwards and upwards! Click here to read our President Report
Spring News from the research community
Three times a year the EHDN newsletter appears. Now you can read the Spring edition – with latest news from the Huntington’s Disease (HD) research community. From page 8-10 you will find a interview with our own President, Astri Arnesen. If you are new to the European Huntington’s Disease Network, known as EHDN, here’s a […]
Conference in North Staffordshire
This year a Huntington’s Disease conference will once again be held in North Staffordshire, Stoke on Trent. Among many brilliant speakers, our own board member Dina de Sousa, will speak at the conference. Do you want to participate? Register here. Here’s a description of the event: Families and care providers continue to face the challenges of […]
What is this new Huntington’s disease drug?
A scientific paper declared a while ago positive results for a trial of the drug deutetrabenazine in Huntington’s disease. The trial studied a new way of treating uncontrollable movements in HD. Now the drug is approved for treatment in the US and is launched as Austedo. Confusing stuff! Read more: New HD drug approved What’s chorea? […]
CHDI: searching for a treatment in Malta
24th of April marked the opening of the 12th CHDI conference in Malta. The aim of the meeting is to learn and discuss where to go from the place we are now to the goal destination: a treatment for Huntington’s disease (HD). Present at the meeting is EHA President Astri Arnesen and board member Svein […]