Category: News

Huntington’s Disease Public Awareness Day 2016

Huntington’s Disease Public Awareness Day Saturday, May 28TH As part of the Together Under the Umbrella awareness campaign for brain disorders, EFNA will organise an information day on Huntington’s Disease. The event is open to those living with Huntington’s disease, their families and friends, carers, health professionals or those with an interest in learning more.…
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#LightItUp4HD for the HD Community

On May 4, 2015, Jamie Walters – a volunteer from the Huntington Society of Canada (HSC) – was instrumental in lighting up the CN Tower to raise the visibility of Juvenile HD (in purple) and HD (in blue) and Huntington disease awareness month, held each May. When the sun set on May 4th, hundreds of…
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How NOT to write a news article about a clinical trial

A confusing story about a huntingtin lowering trial is published in the Telegraph, but cool new stuff is happening! A recent article in the UK newspaper the Daily Telegraph has HD families very excited. The title, “First drug to reverse Huntington’s disease begins human trials”, certainly sounds exciting! But what’s really going on? HDBuzz is…
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1 in 3 Europeans fit under the umbrella – do you?

‘Together Under the Umbrella’ is an innovative campaign which will launch during Brain Awareness Week, March 2016. A year-long initiative of the European Federation of Neurological Associations [EFNA], the campaign will be supported by the European Huntington Association and we encourage you to get involved too! How do I get involved? ORGANISATIONS should visit the…
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Through a Broader Lens: Looking at Non-Motor Symptoms in HD

Common depictions of HD emphasizing only its movement symptoms paint an incomplete picture of the real disease. HD causes both motor and non-motor symptoms that, together, affect the entire body. Now, scientists are using a broader lens to explore this full set of HD symptoms and determine how symptoms might be related in the disease.…
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Give a Toss for Huntington’s Disease

This video is an awareness campaign highlighting the impact that the toss of a “genetic coin” has had on three recent generations of one family. It is thought that there are up to 12,000 other HD families in the UK.  

UCC Researchers focus on gene silencing approaches for HD Hope

Prof. John F. Cryan and Prof. Caitriona O’Driscoll, two researchers in University College Cork ,Ireland with very different backgrounds & expertise came together to combine their research efforts to develop therapies for Huntington’s Disease. In an article published recently Professor Cryan discusses the progress of this collaborative work: Read the article here

Through the eyes of a friend: changes in mood and behavior in early HD

Companions of HD gene carriers are more likely to notice psychological changes in presymptomatic HD. The family and friends of individuals with HD often tell doctors that they began to notice changes in behavior long before a diagnosis was made. To better understand these early signs, researchers analyzed a psychological questionnaire filled out yearly for…
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A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?

Thinking problems in Huntington’s disease take a huge toll from early in the disease. Now, new work suggests that a drug already approved by the FDA to treat another brain disease – multiple sclerosis – may stave off these problems in HD mice. Could these results be real, or are they too good to be…
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Mapping the anatomy of HD: a whole-brain history

Though many scientists have focused on damage to a part of the brain called the striatum as a source of HD symptoms, this is a narrow picture of what changes in the brain during HD. A new book provides a summary of many research techniques over a hundred years that have led to a more…
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