The EHA Board Meeting in Sofia

The European Huntington Association (EHA) board meeting took place in Sofia, Bulgaria. Here the newly elected board discussed the future of EHA. The organization are focusing on especially two projects: Stronger Together and HD on the move. Both of them are initiated by EHA and are going to happen in close collaboration with the European Huntington’s Disease Network (EHDN) and sponsors.

Newsletter from the European Huntington’s Disease Network

The European Huntington’s Disease Network (EHDN) is a nonprofit research network. EHDN forms a collaborative platform of scientists, clinicians, Huntington’s disease (HD) patients and families. The network aims to improve clinical care in HD, advance research, make clinical trials better and easier to conduct. Here is the EHDN November 2016 newsletter.   Here is the newsletter’s […]

Stronger Together: a new project launched by the European Huntington Association

Stronger Together was launched this autumn by the European Huntington Association (EHA). The project aims to get the Huntington’s disease (HD) community involved in research. To reach this aim Stronger Together wants to establish a safe network of HD affected families and researchers. The network will further function as a platform where information and experiences […]

October news from the Enroll-HD community

In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find the entire newsletter here.  In the newsletter you can read how Astri Arnesen, the president of EHA, and Svein Olaf Olsen talk openly about one of the most private decisions for HD families: being tested. They […]

News from the European Huntington’s Disease Network (EHDN) Plenary Meeting 2016

EHDN 2016

Experts in the field of Huntington’s disease research from across the globe gathered at the World Forum in The Hague, Netherlands, between 16 and 18 September for the European Huntington’s Disease Network (EHDN) Plenary Meeting. Attendees heard from eminent speakers from scientific and research backgrounds who delivered presentations on progress in current research, alongside updates […]

The European Huntington Association: Business meeting in The Hague

Participants at the EHA business meeting

The Hague is the third largest city in the Netherlands. This September an important meeting took place in the charming city. While the cyclists passed a building in the middle of the city center, forty-two people from nineteen different countries gathered inside.  Some of them were personally affected by Huntington’s disease while others were health […]

Group skydive in aid of Huntington’s disease research at Plymouth University

A group of people whose lives are touched by Huntington’s disease took part in a skydive to raise money for important research into the condition at Plymouth University Peninsula Schools of Medicine and Dentistry (PUPSMD). The team of six was led by Charly Honey, 24, who has been diagnosed with Huntington’s disease, and included John […]

Retirees cycle across Canada to raise awareness about Huntington’s disease

Two Canadian retirees have cycled across Canada to raise awareness of Huntington disease. The two friends left from Vancouver on May 14 and cycled all but eight of the 72 days it took to cross the country. They’d be in the saddle by 8:30 most mornings and spend between four and six hours on the road. On […]

John Valentine on adjusting to life with an incurable brain disorder

John Valentine watched his father deteriorate with the illness – but he refuses to let it beat him. Watching his father’s personality change was John Valentine’s first encounter with Huntington’s disease. Mood swings, agitation and irritability were frequent manifestations of the disease which led to his death – and all the while, John knew there […]