Category: Projects

New project: e-health for Huntington’s patients and families

In order to ensure good care for Huntington patients and their families, the HEALTHE-RND project aims at developing an e-health platform. The platform will ensure access to help and information – regardless of where people live. Written by Alzbeta Mühlbäck, MD What’s it all about?  Huntington’s disease (HD) require intensive cooperation between different medical disciplines and…
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Race for awareness – video!

18th of August the cycling race Géants Des Ardennes took place in Liège, Belgium. With the help of team leader Jeroen de Schepper, the European Huntington Association participated with their own team: HD on the Bike.  Watch video below! Around 40 people had travelled to Liège from seven different countries. A group of nine people drove 16…
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Learn more about patient advocacy and how to influence!

Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate in EFNA’s workshop! Register before September 21st.  Register here. The  European Federation  of  Neurological Associations  (EFNA)  is an  umbrella  group representing 20 pan-European neurology patient groups – including the European Huntington Association. There’s a consensus among EFNA’s members that…
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HD on the Bike

In the summer of 2018 the European Huntington Association wants to create awareness around Huntington’s disease. And we want to do it in a positive and fun way. We therefore invite all of you to join us in a biking race. We will participate as Huntingtonians United under the slogan HD on the Bike. And…
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A new coalition to give families a impactful voice

The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to announce the formation of the Huntington’s Disease Coalition for Patient Engagement (HD-COPE), a new global coalition to give families who are affected by Huntington disease (HD) a direct and impactful voice in HD clinical research.…
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Collaboration between EHA and EHDN

The 1st of December a meeting took place between EHA and EHDN. The two organizations discussed how they could extend their collaboration and work coordinated with the project Stronger Together.

Any questions about HD? Ask the Doctor

Do you have any questions about Huntington’s disease (HD)? Do not hesitate to ask our doctor, Alzbeta Mühlbäck, using the contact form below HD is a disease that can be quite complicated and sometimes people are left with a lot of questions: “How does it work biologically? What kind of symptoms is normal? My father…
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Stronger Together: a new project launched by the European Huntington’s Association

Stronger Together was launched this autumn by the European Huntington Association (EHA). The project aims to get the Huntington’s disease (HD) community involved in research. To reach this aim Stronger Together wants to establish a safe network of HD affected families and researchers. The network will further function as a platform where information and experiences…
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