16 January 2018

Meeting with Roche




When the groundbreaking results of the Huntingtin lowering trial was announced, the European Huntington Association travelled to Basel to meet […]

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22 December 2017

Christmas card from Roche




This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the […]

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11 December 2017

Groundbreaking results!




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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15 July 2017

Is everyone gone for the summer?




It is summer and all of a sudden it feels like the whole world stops for a second. It is […]

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8 July 2017

Summer news from the HD community




Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the […]

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4 May 2017

Spring News from the research community




Three times a year the EHDN newsletter appears. Now you can read the Spring edition – with latest news from […]

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28 April 2017

Updates from an exciting conference!




24th of April marked the opening of the 12th CHDI conference in Malta. 27th marked the end. What have we learned? HDBuzz has […]

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27 April 2017

What is this new Huntington’s disease drug?




A scientific paper declared a while ago positive results for a trial of the drug deutetrabenazine in Huntington’s disease. The […]

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6 April 2017

New drug for HD approved in USA




Exciting news for the Huntington’s disease (HD) community! The USA drug regulator, the FDA, has approved a new drug in […]

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28 February 2017

Reflecting on HD as a rare disease – and why Enroll-HD is so important




February 28 was the  Rare Disease Day – the day of international recognition for the myriad of little known but […]

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