8 June 2018

A letter from Roche




Roche Pharmaceuticals is currently working on their Huntingtin Lowering drug, RG6042 (formerly known as IONIS-HTTRx). In the letter Patient Partnership […]

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25 April 2018

Amazing news – drug seems to improve symptoms




Yesterday Ionis Pharmaceutical presented new data from their Huntingtin lowering trial, IONIS-HTTRx. The data demonstrates a relationship between reduction of […]

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24 April 2018

Huge progress for patient representation




The first weekend in February was historical: it was the first meeting of the Huntington’s Disease Coalition for Patient Engagement […]

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16 April 2018

Wave partners with Takeda – HD research strengthened




The biotechnology company Wave Life Sciences strengthens their efforts in Huntington’s disease. In February they announced  their collaboration with Takeda, […]

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29 March 2018

Huntington News – now subtitled!




News and updates from the latest CHDI Therapeutics conferences have now been subtitled! In the video you can learn more [...]
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6 March 2018

Research news from EHDN




Read about the Fellowship Programme, get an update on clinical trials, get to know Ed Wild better and get dates […]

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1 March 2018

More positive data from the Ionis/Roche trial released today




Today Ionis and Roche have announced more details from the Huntingtin lowering trial.  The initial results was released in December […]

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16 January 2018

Meeting with Roche




When the groundbreaking results of the Huntingtin lowering trial, IONIS-HTTRx, was announced the European Huntington Association travelled to Basel to […]

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22 December 2017

Christmas card from Roche




This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the […]

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11 December 2017

Groundbreaking results!




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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