3 August 2018

Accelerated evaluation of drug




The European Medicines Agency has acknowledged the huntingtin lowering drug, RG6042 (previously known as IONIS-HTTRx), as a possible therapy that […]

Continue Reading

4 July 2018

News from EHDN




Read about the Registery journey from the very beginning to the more recent successor study Enroll-HD. Cristina Ferreira gives you […]

Continue Reading

8 June 2018

A letter from Roche




Roche Pharmaceuticals is currently working on their Huntingtin Lowering drug, RG6042 (formerly known as IONIS-HTTRx). In the letter Patient Partnership […]

Continue Reading

25 April 2018

Amazing news – drug seems to improve symptoms




Yesterday Ionis Pharmaceutical presented new data from their Huntingtin lowering trial, IONIS-HTTRx. The data demonstrates a relationship between reduction of […]

Continue Reading

24 April 2018

Huge progress for patient representation




The first weekend in February was historical: it was the first meeting of the Huntington’s Disease Coalition for Patient Engagement […]

Continue Reading

16 April 2018

Wave partners with Takeda – HD research strengthened




The biotechnology company Wave Life Sciences strengthens their efforts in Huntington’s disease. In February they announced  their collaboration with Takeda, […]

Continue Reading

29 March 2018

Huntington News – now subtitled!




News and updates from the latest CHDI Therapeutics conferences have now been subtitled! In the video you can learn more [...]

Continue Reading

6 March 2018

Research news from EHDN




Read about the Fellowship Programme, get an update on clinical trials, get to know Ed Wild better and get dates […]

Continue Reading

1 March 2018

More positive data from the Ionis/Roche trial released today




Today Ionis and Roche have announced more details from the Huntingtin lowering trial.  The initial results was released in December […]

Continue Reading

16 January 2018

Meeting with Roche




When the groundbreaking results of the Huntingtin lowering trial, IONIS-HTTRx, was announced the European Huntington Association travelled to Basel to […]

Continue Reading

Events

There are no upcoming events.

Funding Partner