29 March 2018

Huntington News – now subtitled!




News and updates from the latest CHDI Therapeutics conferences have now been subtitled! In the video you can learn more [...]
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1 March 2018

More positive data from the Ionis/Roche trial released today




Today Ionis and Roche have announced more details from the Huntingtin lowering trial.  The initial results was released in December […]

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16 January 2018

Meeting with Roche




When the groundbreaking results of the Huntingtin lowering trial, IONIS-HTTRx, was announced the European Huntington Association travelled to Basel to […]

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22 December 2017

Christmas card from Roche




This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the […]

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11 December 2017

Groundbreaking results!




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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8 July 2017

Summer news from the HD community




Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the […]

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4 May 2017

Spring News from the research community




Three times a year the EHDN newsletter appears. Now you can read the Spring edition – with latest news from […]

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22 November 2016

The World Orphan Drug Conference in Brussels




It was 300 attendees at the World Orphan Drug Conference in Brussels from the 16th to 17th of November. Among them was the European Huntington Association’s President Astri Arnesen, the Board Members Svein Olaf Olsen and Bea De Schepper.

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6 November 2016

Newsletter from the European Huntington’s Disease Network




The European Huntington’s Disease Network (EHDN) is a nonprofit research network. EHDN forms a collaborative platform of scientists, clinicians, Huntington’s […]

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17 October 2016

October news from the Enroll-HD community




In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find […]

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