16 January 2018

Meeting with Roche




When the groundbreaking results of the Huntingtin lowering trial was announced, the European Huntington Association travelled to Basel to meet […]

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22 December 2017

Christmas card from Roche




This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the […]

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11 December 2017

Groundbreaking results!




This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals […]

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8 July 2017

Summer news from the HD community




Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the […]

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4 May 2017

Spring News from the research community




Three times a year the EHDN newsletter appears. Now you can read the Spring edition – with latest news from […]

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22 November 2016

The World Orphan Drug Conference in Brussels




It was 300 attendees at the World Orphan Drug Conference in Brussels from the 16th to 17th of November. Among them was the European Huntington Association’s President Astri Arnesen, the Board Members Svein Olaf Olsen and Bea De Schepper.

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6 November 2016

Newsletter from the European Huntington’s Disease Network




The European Huntington’s Disease Network (EHDN) is a nonprofit research network. EHDN forms a collaborative platform of scientists, clinicians, Huntington’s […]

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17 October 2016

October news from the Enroll-HD community




In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find […]

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1 July 2016

Promising research from CHDI’s 2016 Conference – subtiteled in many languages!




In this video 'Postcard from Palm Springs 2016', HD family advocate and former NBC reporter Charles Sabine presents highlights from [...]
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17 June 2016

Enroll-HD Monthly News Bulletin – June 2016




June 2016 Monthly News Bulletin Latest Enroll-HD data release The second Enroll-HD periodic dataset that includes the clinical data from […]

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