8 July 2017

Summer news from the HD community

Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the […]

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4 May 2017

Spring News from the research community

Three times a year the EHDN newsletter appears. Now you can read the Spring edition – with latest news from […]

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22 November 2016

The World Orphan Drug Conference in Brussels

It was 300 attendees at the World Orphan Drug Conference in Brussels from the 16th to 17th of November. Among them was the European Huntington Association’s President Astri Arnesen, the Board Members Svein Olaf Olsen and Bea De Schepper.

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6 November 2016

Newsletter from the European Huntington’s Disease Network

The European Huntington’s Disease Network (EHDN) is a nonprofit research network. EHDN forms a collaborative platform of scientists, clinicians, Huntington’s […]

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17 October 2016

October news from the Enroll-HD community

In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find […]

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1 July 2016

Promising research from CHDI’s 2016 Conference – subtiteled in many languages!

In this video 'Postcard from Palm Springs 2016', HD family advocate and former NBC reporter Charles Sabine presents highlights from [...]
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17 June 2016

Enroll-HD Monthly News Bulletin – June 2016

June 2016 Monthly News Bulletin Latest Enroll-HD data release The second Enroll-HD periodic dataset that includes the clinical data from […]

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5 June 2016

10,000 now signed up to Enroll-HD!

On April 8 2016, Enroll-HD reached a milestone as the 10,000th person signed up to be part of the study. […]

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15 March 2016

Huntington’s Drug That Silences Gene at Root of Disease Now in Phase 1 Clinical Test:

Timea Polgar has reported on Huntingtonsdiseasenews.com how a drug targeting the cause of Huntington’s disease (HD) was found effective and […]

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11 January 2016

Looking Past the Spin: Results from a Clinical Trial of Cysteamine

In early December, Raptor Pharmaceuticals released clinical trial results evaluating a drug called cysteamine in Huntington’s disease. News headlines about […]

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