Category: Trial Updates

Newsletter from the European Huntington’s Disease Network

The European Huntington’s Disease Network (EHDN) is a nonprofit research network. EHDN forms a collaborative platform of scientists, clinicians, Huntington’s disease (HD) patients and families. The network aims to improve clinical care in HD, advance research, make clinical trials better and easier to conduct. Here is the EHDN November 2016 newsletter.   Here is the newsletter’s…
Read more

October news from the Enroll-HD community

In the Enroll-HD Newsletter of Autumn 2016 you can read current updates from the global Enroll-HD community. You will find the entire newsletter here.  In the newsletter you can read how Astri Arnesen, the president of EHA, and Svein Olaf Olsen talk openly about one of the most private decisions for HD families: being tested. They…
Read more

Promising research from CHDI’s 2016 Conference – subtiteled in many languages!

In this video 'Postcard from Palm Springs 2016', HD family advocate and former NBC reporter Charles Sabine presents highlights from CHDI's 11th Annual Disease Therapeautics Conference, a Forum for Drug Discovery and Development which ran from February 22nd to 25th this year in Palm Springs California. The message is overwhelmingly positive; a 'new age of…
Read more

Enroll-HD Monthly News Bulletin – June 2016

June 2016 Monthly News Bulletin Latest Enroll-HD data release The second Enroll-HD periodic dataset that includes the clinical data from 4146 participants is now available on the Enroll-HD website to any researcher employed at a recognized research institution or company. You can learn more about the types of data and biosamples that are available and…
Read more

10,000 now signed up to Enroll-HD!

On April 8 2016, Enroll-HD reached a milestone as the 10,000th person signed up to be part of the study. That person joined 9,999 others in the worldwide collaborative effort to understand more about HD and provide an infrastructure for more and better research and provide an infrastructure for more and better research, including clinical…
Read more

Huntington’s Drug That Silences Gene at Root of Disease Now in Phase 1 Clinical Test:

Timea Polgar has reported on Huntingtonsdiseasenews.com how a drug targeting the cause of Huntington’s disease (HD) was found effective and safe in animal tests, and clinical studies in humans are beginning, according to newly released data that will be presented at the American Academy of Neurology‘s 68th Annual Meeting in Vancouver, Canada, on April 15–21, 2016.…
Read more

Looking Past the Spin: Results from a Clinical Trial of Cysteamine

In early December, Raptor Pharmaceuticals released clinical trial results evaluating a drug called cysteamine in Huntington’s disease. News headlines about this trial are heavy on media spin, and so HDBuzz is here to break down what these new results really mean for the Huntington’s community. Clinical Trials and Pomegranates? Though it might not be obvious…
Read more