In this webinar, Eurordis will explore the key findings from the latest Rare Barometer report on
the opinion of people living with rare diseases on future policies that may impact their lives.
They will also discuss how you can use the results of the survey in your advocacy.
Sandra Courbier and Jessie Dubief from the Rare Barometer Team will present the survey,
and together with Jenny Steele and Anna Kole they will answer any questions and inform
you how the survey results can support you in the #30millionreasons campaign to help
advocate for a European action plan on rare diseases!
Webinar speakers are:
– Sandra Courbier, Social Research Director
– Jessie Dubief, Rare Barometer Research Executive
– Anna Kole, Public Health Policy Director – Rare2030 Project Lead
– Jenny Steel, Campaign Manager
The webinar will include a Q&A for you to ask your questions.