The Huntington’s Disease Coalition for Patient Engagement (HD-COPE) will meet in March. It’s the 3rd meeting since the coalition was established in 2017.
After one year of planning, HD-COPE was launched in September 2017 by the European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC).
The overall aim of the coalition is to be the voice of family members. They want to speak the patients’ needs and be a link between researchers and families. The HD-COPE team consists of people impacted by Huntington’s disease in one way or the other: as caregivers, at-risk, gene positive or negative.
In Toronto the team will discuss patient engagement, drug development and meet with pharmaceutical companies.
Learn more: HD-COPE’s second meeting