Improving care for rare disease patients in Europe (Rare Disease Day Webinar)

When:
23rd February 2021 @ 3:00 pm – 4:00 pm
2021-02-23T15:00:00+01:00
2021-02-23T16:00:00+01:00
Contact:
European Reference Network for Rare Neurological Diseases (ERN-RND)

Free of charge | Open to everyone

In this webinar, we will be discussing care of rare disease patients in Europe, focusing on rare neurological diseases, and providing different perspectives: from the clinician to the patient’s perspective and from a European level to a more local one with examples from France, Germany and Hungary.

The webinar will start with short presentations by the speakers followed by a discussion.

SPEAKERS:

  • Holm Graessner, coordinator of the European Reference Network for Rare Neurological Diseases (ERN-RND)
  • Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA)
  • Sophie Bernichtein, project manager of BRAIN-TEAM in France
  • Tobias Mentzel, patient advocate at ELA Germany
  • Maria Judit Molnar, Professor of Neurology and director of Semmelweis University’s Institute of Genomic Medicine and Rare Disorders, Hungary

WHEN?
Tuesday, 23 of February 
15:00 Central European Time
14:00 in Portugal, England
16:00 in Finland, Greece

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