When:
23rd February 2021 @ 3:00 pm – 4:00 pm
2021-02-23T15:00:00+01:00
2021-02-23T16:00:00+01:00
Contact:
European Reference Network for Rare Neurological Diseases (ERN-RND)
Free of charge | Open to everyone
In this webinar, we will be discussing care of rare disease patients in Europe, focusing on rare neurological diseases, and providing different perspectives: from the clinician to the patient’s perspective and from a European level to a more local one with examples from France, Germany and Hungary.
The webinar will start with short presentations by the speakers followed by a discussion.
SPEAKERS:
- Holm Graessner, coordinator of the European Reference Network for Rare Neurological Diseases (ERN-RND)
- Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA)
- Sophie Bernichtein, project manager of BRAIN-TEAM in France
- Tobias Mentzel, patient advocate at ELA Germany
- Maria Judit Molnar, Professor of Neurology and director of Semmelweis University’s Institute of Genomic Medicine and Rare Disorders, Hungary
WHEN?
Tuesday, 23 of February
15:00 Central European Time
14:00 in Portugal, England
16:00 in Finland, Greece