Printed Resources

  • A Physician’s Guide to the Management of Huntington’s Disease, (2nd edition) Neal Ranen, Carol Peyser, Susan Folstein, 1999, Huntington’s Disease Society of America (HDSA), New York, NY.
  • Choosing Footwear
  • Physical Activity
  • Physical Activity Workbook
    Developed by the ENGAGE-HD collaborators, Cardiff University for a randomised controlled trial of physical activity in HD. The physical activity workbook was developed following focus groups conducted around the UK with HD families, formal carers, healthcare professionals, and the Huntington’s Disease Association England and Wales find out how the workbook could be designed to specifically support an individualized lifestyle approach to enhancing physical activity in HD.

HD Organisations

Studies

Engage-HD