News

The Inherited Shame: Finding out about disease (video!)

We are proud to launch Part I in our interview series with the Norwegian author Thorvald Steen! In Part I ...
Read More

Free eLearning Platform for Neurology Advocates

The newly-launched platform is developed by the European Federation of Neurological Associations (EFNA). The eLearning aim to upskill neurology advocates ...
Read More

WEBINAR | Summary of the year and looking ahead

Join our last webinar in 2020! Together with Prof. Anne Rosser, Dr. Ralf Reilmann and Dr. Alzbeta Mühlbäck we will take ...
Read More

Virtual Meeting on How to Improve Access to Care for Huntington Families (Video!)

The 3rd of December representatives from different European institutions and organisations discussed how to ensure better access to care, services ...
Read More

Adriano is walking 1000 km to raise awareness of Huntington’s Disease

Adriano Meireles is 28 years old and at risk for Huntington's disease. To raise awareness and funds for the Portuguese ...
Read More

Are you our new Web Editor?

Our longtime web editor is leaving us for new challenges. Now we are looking for someone who has personal experience ...
Read More

Moving Forward – A new project

We have just launched a project called "Moving Forward" where we aim to mobilise people at risk or presymptomatic to become ...
Read More

PTC Therapeutics has started in-human Huntington’s disease trial

Two days ago, PTC Therapeutics announced that the drug candidate PTC518 has entered into a “Phase 1 Clinical Trial”. The ...
Read More

VIRTUAL ROUNDTABLE: Discuss how to ensure better access to care!

You are invited to discuss how to ensure better access to care, services and treatment for all patients affected by ...
Read More