News

DAY 3: CHDI Therapeutics Conference

The 15th Annual Huntington’s Disease (HD) Therapeutics Conference was taking place in Palm Springs from February 24 to 27. Here ...
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TODAY IS RARE DISEASE DAY 2020!

February 29 is a rare day - it comes only once every 1461 days - and it is dedicated to ...
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DAY 2: CHDI Therapeutics Conference

The 15th Annual Huntington’s Disease (HD) Therapeutics Conference is currently taking place in Palm Springs. Here is a summary of ...
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DAY 1: CHDI Therapeutics Conference

The 15th Annual Huntington’s Disease (HD) Therapeutics Conference is currently taking place in Palm Springs. Here is a summary of ...
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Updates from CHDI Therapeutics Conference

Photo, left to right: Svein Olaf Olsen and Astri Arnesen at the CHDI Therapeutics Conference in 2016. The 15th Annual ...
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First national meeting in Spain – Video!

In the beginning of February, all of the Spanish Huntington’s disease associations were gathered in Madrid for the first time.  ...
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Meeting on how to improve care in Europe

In January, patient advocates visited the European Reference Network for Rare Neurological Diseases. During the meeting, they discussed how to ...
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Left to right: Olca Engin-Sarialtin, Astri Arnesen, Svein Olaf Olsen.

September 13: EHA Business Meeting

The European Huntington Association (EHA) Business Meeting is held every other year and is taking place around the same time ...
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“RARE/D”: A NEW RARE DISEASE PODCAST

RARE/D is a new podcast series that started on December 29. On the podcast, topics such as genome editing and ...
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