Meeting on how to improve care in Europe

In January, patient advocates visited the European Reference Network for Rare Neurological Diseases. During the meeting, they discussed how to ...
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Left to right: Olca Engin-Sarialtin, Astri Arnesen, Svein Olaf Olsen.

September 13: EHA Business Meeting

The European Huntington Association (EHA) Business Meeting is held every other year and is taking place around the same time ...
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RARE/D is a new podcast series that started on December 29. On the podcast, topics such as genome editing and ...
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Webinars – European Reference Network for Rare Neurological Diseases

Join the webinars held by the European Reference Network for Rare Neurological Diseases on 21 January and 18 February! The ...
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EURORDIS Black Pearl Awards – Live Stream!

EURORDIS Black Pearl Awards is taking place on 18 February in Brussels. To purchase a ticket to attend the event ...
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29 February 2020 will be the thirteenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds ...
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Huntington’s Disease Awareness Month

Over the last years, May has been Huntington Disease Awareness Month. Starting off at the Huntington’s Society of Canada, Awareness ...
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EHDN2020 Plenary Meeting

Every second year European Huntington’s Disease Network (EHDN) hosts one of the world’s largest conferences dedicated solely to Huntington’s disease ...
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Left to right: Anne Lennon Bird, Svein Olaf Olsen and Astri Arnesen.

Unpacking Wave’s PRECISION-HD2 huntingtin-lowering trial announcement

Just before the new year, Wave announced that the drug in the PRECISION-HD2 trial had successfully lowered the concentration of ...
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