Italian Welfare Award for Huntington Onlus!Read more.
Letter from Pavla Šašinková: Amazing donations
This summer I got an unexpected e-mail. Bea de Schepper had collected medical equipment, stored it in her house inRead more.
How to start your own support group – video!Read more.
Breaking! NEW VARIANT OF JHD DISCOVERED – video!Read more.
Two important meetings in ViennaRead more.
Race for awareness – video!Read more.
Learn more about patient advocacy and how to influence!
Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate inRead more.
Accelerated evaluation of drug
The European Medicines Agency has acknowledged the huntingtin lowering drug, RG6042 (previously known as IONIS-HTTRx), as a possible therapy thatRead more.
EFNA Survey: need for increased awareness
A newly published survey conducted by EFNA, shows that young Europeans with neurological conditions lives with a fear of isolationRead more.