The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology.

BioPontis Alliance for Rare Diseases is an international nonprofit organization whose mission is to advance promising science into potential treatments for rare neurological diseases. We meet our mission by involving patients in the development of their own treatments, through alliances with patients organizations worldwide.

Rare Diseases Europe (EURORDIS) is a unique, non-profit alliance of over 700 rare disease patient organisations from more than 60 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.