The European Huntington’s Disease Network (EHDN) is a nonprofit research network committed to advancing research, facilitating the conduct of clinical trials, and improving clinical care in HD. Through the EHDN a platform has been created such that basic scientists, clinicians, patients and families can collaborate on academic and industry studies to fulfil its mission. EHDN is one of the most important partners of EHA.
The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology.
Rare Diseases Europe (EURORDIS) is a unique, non-profit alliance of over 700 rare disease patient organisations from more than 60 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
European Reference Network – Rare Neurogical Diseases (ERN-RND) was established by the EU to support patients and families affected by rare neurological diseases (RND) which requires much specialised knowledge, treatment and resources. European Reference Networks (ERNs) are virtual networks connecting healthcare professionals around Europe with expertise in rare diseases which allows them to discuss a patient’s diagnosis and care, with their consent, via an online IT platform.
BioPontis Alliance for Rare Diseases is an international nonprofit organization whose mission is to advance promising science into potential treatments for rare neurological diseases. We meet our mission by involving patients in the development of their own treatments, through alliances with patients organizations worldwide.