Tag: HD

Huntington’s Disease Youth Organization needs you!

HDYO is looking to hold a review meeting on the future direction of the Young Adult Working Group of EHDN at the conference in Vienna in Sept. The proposal is to change the direction of the Young Adult Working Group to be focused on Young People and Research.  This will take many forms including: How…
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News from EHDN

Read about the Registery journey from the very beginning to the more recent successor study Enroll-HD. Cristina Ferreira gives you an insider’s view of her personal experiences with Regisery in an inspiring interview- definitely worth a read so don’t miss out on this interesting newsletter.   [pdf-embedder url=”http://eurohuntington.org/wp-content/uploads/2018/07/EHDN-News-July2018.pdf”]