Tag: huntington’s disease

Latest Huntington’s disease news!

The EHDN Newsletter is here! The 39th edition is dedicated to ethics in Huntington’s disease. Find it here. The European Huntington’s Disease (EHDN) newsletter aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July…
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New documentary “Absolute Beginners” – watch it now!

Absolute Beginners portrait six gene positive people and their reflections on the onset of Huntington’s disease. Watch it now! Absolute Beginners is a creative documentary presented by the French Huntington association Dingdingdong and directed by Fabrizio Terranova. You can watch it with German, English, Spanish or Portuguese subtitles on their website: From dingdingdong: A film about the…
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Race for awareness – video!

18th of August the cycling race Géants Des Ardennes took place in Liège, Belgium. With the help of team leader Jeroen de Schepper, the European Huntington Association participated with their own team: HD on the Bike.  Watch video below! Around 40 people had travelled to Liège from seven different countries. A group of nine people drove 16…
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Learn more about patient advocacy and how to influence!

Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate in EFNA’s workshop! Register before September 21st.  Register here. The  European Federation  of  Neurological Associations  (EFNA)  is an  umbrella  group representing 20 pan-European neurology patient groups – including the European Huntington Association. There’s a consensus among EFNA’s members that…
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Huntington’s Disease Youth Organization needs you!

HDYO is looking to hold a review meeting on the future direction of the Young Adult Working Group of EHDN at the conference in Vienna in Sept. The proposal is to change the direction of the Young Adult Working Group to be focused on Young People and Research.  This will take many forms including: How…
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Join us – HD on the Bike

Join us in creating awareness! The 18th of August the European Huntington Association will bike for Huntington's Disease. And we invite all of you to join us. Everyone can join: if you’re directly affected by the disease, if you have a friend, a husband or a wife that’s affected by the disease, if you are…
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