8 June 2018

A letter from Roche




Roche Pharmaceuticals is currently working on their Huntingtin Lowering drug, RG6042 (formerly known as IONIS-HTTRx). In the letter Patient Partnership […]

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25 April 2018

Amazing news – drug seems to improve symptoms




Yesterday Ionis Pharmaceutical presented new data from their Huntingtin lowering trial, IONIS-HTTRx. The data demonstrates a relationship between reduction of […]

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22 April 2018

Update message from the Roche team




On her way to board a flight to Los Angeles Mai-Lise Nguyen, Patient Partnership Director at Roche, sent an update […]

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Events

Oct
4
Fri
8:00 am EHA Conference @ Ramada Bucharest Convention Center
EHA Conference @ Ramada Bucharest Convention Center
Oct 4 @ 8:00 am – Oct 6 @ 3:00 pm
EHA Conference @ Ramada Bucharest Convention Center
The European Huntington Association are happy to announce that our next conference will be held in Bucharest, Romania! We have[...]

Funding Partners