Taking part in HD history

During our conference in Sofia we sat down and talked with Dr. Ralf Reilmann. Dr. Reilmann is neurologist and the founder of George Huntington Institute in Münster. He is involved in most of the clincial trials in HD in Europe and talked to us about the importance of participating.

News from Therapeautics Confernce

In this video ‘Postcard from Palm Springs 2016’, HD family advocate and former NBC reporter Charles Sabine presents highlights from CHDI’s 11th Annual Disease Therapeautics Conference, a Forum for Drug Discovery and Development which ran from February 22nd to 25th 2016 in Palm Springs California. The message is overwhelmingly positive; a ‘new age of hope is dawning’.

Here you can find the video subtitled in Greek, Polish, Russian, Italian, French, Arabic, German, Spanish, Romanian, Finnish and Dutch. 

Hope for the future

Prof. Georg Bernhard Landwehrmeyer is a professor of neurology (clinical neurobiology) at Ulm University in the department of neurology where the central coordination of the European Huntington’s Disease Network (EHDN) is situated. Prof Landwehrmeyer was instrumental in founding EHDN in 2004. He has served as principal investigator in several Huntington’s disease trials and is the principal investigator of Enroll-HD study, a  longitudinal observational study on Huntington’s disease.

Lowering the harmful huntingtin

Dr. Sarah Tabrizi has worked on research into neurodegenerative diseases since her PhD at UCL. She has had a major research interest in Huntington’s disease (HD), and Sarah’s team is spearheading a major effort to develop and test new disease-modifying therapies for HD. In this interview Dr. Tabrizi talks about the IONIS-HTTRx trial, which aims to lower the levels of the harmful huntingtin (HTT) protein.

Here is a interview with Sarah Tabrizi, first published in Spring 2016 issue of Enroll!

GENETIC TESTING AND AVAILABLE TREATMENT

Prof. Dr. med Jean-Marc Burgunder works in Switzerland. He studied neurology at the University of Bern and in 1999 he was appointed titular professor. Dr. Burgunder then served as a medical professor at the University of Singapore from 2002 to 2004. On his return, he established himself in Bern, where he teach, conduct research and work with genetic counselling.