Vienna 2018

Vienna 2018

EHA Business Meeting • EHDN Plenary Meeting

European Huntington Association

Business Meeting

During the meeting, the EHA board was re-elected with Astri Arnesen continuing her job as president for two more years. You can find the rest of the board members here.

The newly established Greek Huntington Association were present, as well as the Huntington Association of Gran Canaria and the Huntington Association of Hungary. All of the three associations were accepted as new members of the European Huntington Association.

Further, Dr. Alzbeta Mühlbäck gave a report on Ask the Doctor. She could announce to the crowd that over the last couple of years, the service has received questions from 22 countries.

At the end of the day, the 64 participants were split into smaller groups. Here they discussed which topics they wished to see more of during next year’s conference in Bucharest. Read more here.

13th of September  

•64 participants

Full program

• Next meeting: 4 – 6 of October in Bucharest, Romania

Minutes of the
Business Meeting


Plenary Meeting


Full size: click on the image

EHDN Plenary Meeting: 14th – 16th of September

• Around 1000 participants

Full program

The European Huntington’s Disease Network (EHDN) is a non-profit research network committed to advance research, clinical trials and improve clinical care in Huntington’s Disease

Presence and Treatment of Psychiatric Symptoms

with Karen Anderson 

What are the most common psychiatric symptoms in people with Huntington’s disease? And what can you do about them? In this 12 minute presentation by Karen E Anderson from Georgetown University, you can learn more about psychiatric symptoms – with apathy in particular.

Results of the First Huntingtin Lowering Drug Trial

with Sarah Tabrizi 

In this lecture, Trabrizi walk us through Huntingtin Lowering and the results of the first Huntingtin Lowering drug trial – which looks very promising!

How to cope with Huntington’s Disease

with Mathias Falk

Listen to Mathias Falk’s honest testimony on how it is to live as a gene carrier.

– I said to my friends: “When I get the symptoms, kill me” and they said “Okay, we can do that”. But now I’ve told them: “Don’t”.

Thank you for sharing your story, Mathias