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We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.
EHA Board elected October 2022
If you are passionate about digital communications and experienced in social media and audiovisual editing, apply now for our new position as communication manager and join our international team.
We are a non-profit organization uniting people affected by Huntington’s disease (HD) in Europe. We play an important role in building and maintaining our network and provide information about HD, ongoing activities and research.
✅ Full-time position
✅ Home-based work
Last Monday, we had a webinar with Henk Schuring, Chief Regulatory and Commercialization Officer at Prilenia, and Anne Rosser, Professor at Cardiff University, where we had the opportunity to better understand what Prilenia’s request for EMA’s (European Medicines Agency) approval of Pridopidine means for the Huntington’s Disease community.
🙌 Can’t wait to learn more? Dive into our comprehensive article, covering the webinar’s key topics and the frequently asked questions, for an in-depth understanding of the implications for patients.
The Moving Forward project from the European Huntington Association is growing and working on several fronts, and is now collaborating with 🌎 9 HD Associations in Europe.
To make the Moving Forward work more visible to the national and international HD communities, we have created Facebook and Instagram accounts exclusively dedicated to this project.
☺️ We believe that having our own communication channels will make it easier for people to get the latest Moving Forward updates and take part in everything we have going on.
Follow us now and be the first one to check our new post with exercise tips for HD families and the most recent chapter written by Luis for the Chronicle of a Fortune Foretold!
🌎 With nearly 300 participants from over 23 countries, the EHA Conference in Belgium marked a decisive opportunity for the HD global community and contributed to our main values for this event: 💡 Knowledge, 💙 empathy and 💪 empowerment.
🙌 A united community for a united action.
Together with physiotherapists, we have developed a resource to help you live an active life.
Do you have any questions about Huntington's disease? Ask our doctor!
Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.
This project wants to hear and engage those traditionally less involved in Huntington Disease research.
An European platform where all Huntington’s disease trials are presented in plain language.
A global initiative to represent the voice of the global HD community.
An online eHealth platform to improve the quality of life for those of us affected by rare diseases
To learn more about our projects, events and other activities related to huntington disease and our big community
