We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.

  • Connect HD affected all over Europe
  • Raise awareness
  • Inform
  • Support research

EHA Board elected October 2022


OPEN VACANCY! Communication Manager at the European Huntington Association.

If you are passionate about digital communications and experienced in social media and audiovisual editing, apply now for our new position as communication manager and join our international team.

We are a non-profit organization uniting people affected by Huntington’s disease (HD) in Europe. We play an important role in building and maintaining our network and provide information about HD, ongoing activities and research.

✅ Full-time position
✅ Home-based work

🟢 NEW WEBINAR VIDEO AVAILABLE: Prilenia filing for EMA approval for Pridopidine - What does this mean for patients?

Last Monday, we had a webinar with Henk Schuring, Chief Regulatory and Commercialization Officer at Prilenia, and Anne Rosser, Professor at Cardiff University, where we had the opportunity to better understand what Prilenia’s request for EMA’s (European Medicines Agency) approval of Pridopidine means for the Huntington’s Disease community.

🙌 Can’t wait to learn more? Dive into our comprehensive article, covering the webinar’s key topics and the frequently asked questions, for an in-depth understanding of the implications for patients.

👋 Moving Forward goes solo!

The Moving Forward project from the European Huntington Association is growing and working on several fronts, and is now collaborating with 🌎 9 HD Associations in Europe.

To make the Moving Forward work more visible to the national and international HD communities, we have created Facebook and Instagram accounts exclusively dedicated to this project.

☺️ We believe that having our own communication channels will make it easier for people to get the latest Moving Forward updates and take part in everything we have going on.

Follow us now and be the first one to check our new post with exercise tips for HD families and the most recent chapter written by Luis for the Chronicle of a Fortune Foretold!

✨ Relive the incredible moments from EHA Conference 2023 in Belgium!

🌎 With nearly 300 participants from over 23 countries, the EHA Conference in Belgium marked a decisive opportunity for the HD global community and contributed to our main values for this event: 💡 Knowledge, 💙 empathy and 💪 empowerment.

🙌 A united community for a united action.  

Check out our Online Resources

Get Active!

Together with physiotherapists, we have developed a resource to help you live an active life.

Ask the doctor

Do you have any questions about Huntington's disease? Ask our doctor!


Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.


Do you have trouble sleeping? Get simple tips on how to improve sleep here.

Oral care

Keeping the mouth healthy is extremely important for people affected by Huntington's disease.

online training

An online free course about Huntington’s Disease (HD) and how to provide the best care.


Moving Forward

This project wants to hear and engage those traditionally less involved in Huntington Disease research.

HD Trial Finder

An European platform where all Huntington’s disease trials are presented in plain language.


A global initiative to represent the voice of the global HD community.


An online eHealth platform to improve the quality of life for those of us affected by rare diseases

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