European Huntington Association – Inspiring and empowering people affected by Huntington Disease

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EHDN2022 Plenary Meeting

September 16^th – 18^th, 2022 in Bologna

Topics presented during the EHDN2022 Plenary Meeting will contain reports on recent advances in HD research and care. Aside from participating in the plenary and other parallel sessions, attendees will also have the opportunity to meet experts in the field of HD studies in more informal settings.

In addition, the program also includes evening activities, ranging from informal meetings with industry experts to special lectures, a photography exhibition and a social network evening.

Watch the video here

Patient perspective on the Global Action Plan on Epilepsy and other Neurological Disorders

Watch the video here

HD Trial Finder video presentation

The European webpage where all ongoing trials are presented in plain language

Click Here

What is HD CAB? (UPDATED)

Which organization joines this project? How they are working together? What do they want to achieve in HD-CAB? Watch this video introduction to the new initiative of EHA, IHA and HDYO.

Click here

Online talk with Dimitri Poffé - Thursday 14 July at 19:00 CET

Join the Moving Forward team on Thursday 14 July at 19:00 h (CET) for a talk with Dimitri Poffé 🚴, a young French adventurer who is cycling across Latin America to raise awareness about Huntington’s Disease.

This conversation will be held entirely in Spanish via Zoom, and you can register here

More information about Dimitri’s journey in this article

Participate in the Photo Exhibition at the EHDN Plenary Meeting!

We need your photos and creativity this year!

Anybody interested in the topic – patients, family members, HD professionals, family friends and the general public – is invited to submit their photos illustrating the topic of “Abandonment: From Landscapes to Mindscapes”. You can submit more than one image (maximum of 2) if you wish.

Read the full article here

Adoption of the Global Action Plan on Epilepsy and other Neurological Disorders

We are delighted to support today’s announcement of the Global Action Plan on #Epilepsy & Neurological Disorders at the World Health Assembly.

The European Federation of Neurological Associations – EFNA, along with members of the OneNeurology partnership which EFNA co-founded, celebrates a major milestone for all those affected by neurological disorders today, with the adoption of the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders (GAP) at this week’s 75th World Health Assembly.

Read the full article here