EUROPEAN HUNTINGTON ASSOCIATION

We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.

  • Connect HD affected all over Europe
  • Raise awareness
  • Inform
  • Support research

EHA Board elected October 2022

OUR LATEST NEWS

PTC announced promising 12 month results from their Phase 2 PIVOT-HD study of oral PTC518

📢 PTC’S  findings highlight the potential of PTC518 in treating Huntington’s disease. 
 
✨ It is very exciting and good news to see results of this magnitude. 
 
➡️Read the complete article and the full press release to learn more.

uniQure Receives FDA Regenerative Medicine Advanced Therapy (RMAT) Designation for Investigational Gene Therapy AMT-130 in Huntington’s Disease

🙌Uniqure’s gene therapy for Huntington’s Disease, named AMT-130 has passed a significant next step.

The company announced that the US regulators, FDA, has granted them a Regenerative Medicine Advanced Therapy (RMAT) designation.

Read the complete article to learn more.

The European Elections Shape Our Future – Your Vote Is Important!

🗓️ The European Elections Will Be Held From The 6th To The 9th Of June Across The EU. The 705 Members of the European Parliament, who will be in charge of decision and policymaking for the next five years, will be elected by the citizens who show up to vote.

🇪🇺 We encourage you to find the candidates in your country who have shown they understand the importance of the future of our healthcare and show up to vote.

➡️ Read the complete article to find out the European initiatives that influence the life of HD families

uniQure Receives FDA Regenerative Medicine Advanced Therapy (RMAT) Designation for Investigational Gene Therapy AMT-130 in Huntington’s Disease

🙌Uniqure’s gene therapy for Huntington’s Disease, named AMT-130 has passed a significant next step.

The company announced that the US regulators, FDA, has granted them a Regenerative Medicine Advanced Therapy (RMAT) designation.

Read the complete article to learn more.

The European Elections Shape Our Future – Your Vote Is Important!

🗓️ The European Elections Will Be Held From The 6th To The 9th Of June Across The EU. The 705 Members of the European Parliament, who will be in charge of decision and policymaking for the next five years, will be elected by the citizens who show up to vote.

🇪🇺 We encourage you to find the candidates in your country who have shown they understand the importance of the future of our healthcare and show up to vote.

➡️ Read the complete article to find out the European initiatives that influence the life of HD families

The Eu Parliament Elections Are Around The Corner… Why Should We Vote?

🇪🇺 The 705 Members of the European Parliament (MEPs) that are elected, shape the future of 450 million European citizens – including ours.
 
🤝 The challenges of the communities affected by neurological diseases are unique, and therefore require special attention from policy-makers and decision-makers.
 
🌎 Read the full article to find out how these election can impact the Huntington’s disease community and other communities affected by neurological diseases.

The Eu Parliament Elections Are Around The Corner… Why Should We Vote?

🇪🇺 The 705 Members of the European Parliament (MEPs) that are elected, shape the future of 450 million European citizens – including ours.
 
🤝 The challenges of the communities affected by neurological diseases are unique, and therefore require special attention from policy-makers and decision-makers.
 
🌎 Read the full article to find out how these election can impact the Huntington’s disease community and other communities affected by neurological diseases.

The EHA at the 12th European Conference on Rare Diseases and Orphan Products

Last week, we attended the European Conference on Rare Diseases and Orphan Products organized by EURORDIS in Brussels. This is the biggest conference focusing on rare diseases.

These were two intense days of learning and sharing, where more than 700 participants gathered to strengthen the voices of people impacted by rare diseases and discuss concrete measures to provide a better quality of life to all those living with a rare condition.

The Rare Disease Community is Better Together! #ECRD2024

Let’s move together for Huntington Dance

🕺 As we move through #MayAwarenessMonth, we bring you a closer look throughout the history of Huntington’s Disease.

💃 Learn all about our #HuntingtonDance initiative and help us make history around the world!

Let’s move together for Huntington Dance

🕺 Here is the choreography created by Coco Style Spain to raise awareness for Huntington’s Disease worldwide by dancing to Katy Perry’s song Fireworks.
 
💃 You can now start rehearsing the steps to publish your video during #MayAwarenessMonth as part of the Huntington Dance initiative and remember to tag us on Facebook and Instagram and use the hashtag #HuntingtonDance

Check out our Online Resources

Get Active!

Together with physiotherapists, we have developed a resource to help you live an active life.

Ask the doctor

Do you have any questions about Huntington's disease? Ask our doctor!

nutrition

Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.

Sleep

Do you have trouble sleeping? Get simple tips on how to improve sleep here.

Oral care

Keeping the mouth healthy is extremely important for people affected by Huntington's disease.

online training

An online free course about Huntington’s Disease (HD) and how to provide the best care.

LEARN MORE ABOUT OUR INTERNATIONAL PROJECTS

Moving Forward

This project wants to hear and engage those traditionally less involved in Huntington Disease research.

HD Trial Finder

An European platform where all Huntington’s disease trials are presented in plain language.

HD-CAB

A global initiative to represent the voice of the global HD community.

HealthE-RND

An online eHealth platform to improve the quality of life for those of us affected by rare diseases

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