We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.
EHA Board elected October 2022
For Rare Disease Day 2025, the European Huntington Association and the International Huntington Association have joined forces to highlight the strength, resilience, and individuality of the HD community.
In this video, members of our communty share their passions and hobbies, demonstrating that living with a rare disease goes far beyond what is seen on the surface.
At the EHDN & Enroll-HD Conference in Strasbourg, we spoke with Siri Hagen Kjølaas, Ph.D., about her research on the emotional and psychological challenges faced by children growing up in HD-affected families.
Her work highlights the need for better support systems and communication strategies to help families navigate these difficulties.
📺 Watch the full video to learn more!
The European Huntington Association, together with the International Huntington Association, is organizing a special campaign for Rare Disease Day 2025 on February 28th!
This year’s slogan is “More than you can imagine”, and we want to showcase that people in the HD community are so much more than the disease.
Read the full article to see how you can take part!
Health technologies include medications, devices, and systems designed to address health problems, improve health outcomes, and enhance the quality of care.
For HD, health technologies include potential therapies that, if developed, could profoundly impact patients’ lives.
But, in case a therapy is developed, how do governments decide which health technologies are worth adopting? This is where Health Technology Assessments (HTAs) come in.
🙏 The solidarity project led by the EHA through its Moving Forward initiative, in collaboration with ACHE, has closed 2024 with outstanding results.
📚 With over 270 copies sold, “Chronicle of a Fortune Foretold” has become a key tool in raising awareness about HD and generating funds to support families affected by this neurodegenerative condition.
💜 The book, available in a bilingual edition (English and Spanish), combines a poignant story with original illustrations by Paloma Agüera.
🙏 The solidarity project led by the EHA through its Moving Forward initiative, in collaboration with ACHE, has closed 2024 with outstanding results.
📚 With over 270 copies sold, “Chronicle of a Fortune Foretold” has become a key tool in raising awareness about HD and generating funds to support families affected by this neurodegenerative condition.
💜 The book, available in a bilingual edition (English and Spanish), combines a poignant story with original illustrations by Paloma Agüera.
🗓️ On October 23rd, the European Huntington Association held an engaging and informative webinar titled “Research Insights: Latest Updates on Ongoing Studies.”
The webinar provided a comprehensive overview of the latest developments in clinical trials, with each company sharing updates and preliminary insights from their ongoing or completed studies in HD treatment.
These presentations underscored the diversity of approaches and the progress being made across therapeutic areas.
🗓️ On October 23rd, the European Huntington Association held an engaging and informative webinar titled “Research Insights: Latest Updates on Ongoing Studies.”
The webinar provided a comprehensive overview of the latest developments in clinical trials, with each company sharing updates and preliminary insights from their ongoing or completed studies in HD treatment.
These presentations underscored the diversity of approaches and the progress being made across therapeutic areas.
🧠 While the scientific community keeps working to develop pharmacological treatments, it is important that we focus on improving quality of life and adopting habits that are beneficial for our health.
💪 Physical activity is an important component of a healthy lifestyle. There are good reasons to believe exercise might be helpful in HD.
➡️ Read the complete article to find out the the benefits of physical activity and available resources to get started!
Here is the choreography created by Coco Style Spain to raise awareness for Huntington’s Disease worldwide by dancing to Katy Perry’s song Fireworks.
You can now start rehearsing the steps to publish your video during #MayAwarenessMonth as part of the Huntington Dance initiative and remember to tag us on Facebook and Instagram and use the hashtag #HuntingtonDance
Together with physiotherapists, we have developed a resource to help you live an active life.
Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.
Do you have trouble sleeping? Get simple tips on how to improve sleep here.
Keeping the mouth healthy is extremely important for people affected by Huntington's disease.
An online free course about Huntington’s Disease (HD) and how to provide the best care.
Do you have any questions about Huntington's disease? Ask our doctor!
This project wants to hear and engage those traditionally less involved in Huntington Disease research.
An European platform where all Huntington’s disease trials are presented in plain language.
A global initiative to represent the voice of the global HD community.
An online eHealth platform to improve the quality of life for those of us affected by rare diseases
To learn more about our projects, events and other activities related to huntington disease and our big community
We’re bringing together families, professionals, and supporters to strengthen the HD community 💙 You can also make a difference by joining our Teaming initiative, donating just €1 per month to support families affected by Huntington’s disease. Together, we get stronger!