MAY AWARENESS MONTH 2022
Each year the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by Huntington’s Disease.
Patients, caregivers, family members, and friends are organizing events and webinars worldwide, sharing stories about Huntington’s disease (HD) on social media and even lighting landmarks blue and purple.
Today begins #MayAwarenessMonth 2022! We want the HD community to raise their voice during this month, because we are STRONGER TOGETHER and we are every day TURNING HOPE INTO REALITY.
FAMILIES ACCESS TO SUPPORT AND CARE
We have set up a survey to map whether HD patients and family members have access to support and care. We hope family members, patients and professionals from all over Europe can take the time to help us and respond. The survey is available in 20 languages.
Webinar 🚴 The adventure of Dimitri Poffé
We want to close this year’s May Awareness Month in the best way possible, so we contacted Dimitri Poffé, a French Huntington Disease advocate who decided to make a trip by bike through Latin America in order to raise awareness for Huntington’s disease
Together we organized a Webinar 💻 on May 26th to talk about his journey and experience during these months. Join us to learn more about Dimitri’s decision of enjoying life to the fullest.
📆 Thursday 26th of May, from 18:00-19:00 CETSurvey available here in 26 languages
Participate in the Moving Forward Forum!
- This is your moment to speak and be heard.
- This is your moment to learn from others and benefit from their experience.
- This is the moment to use your voice!