COVID-19 & HUNTINGTON’S DISEASE

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Events

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Webinar 26/03 - GENERATION HD1
🌏 We organized an open Webinar to inform the HD Community about the situation for the Generation HD1 Trial.
Watch the full video
VACCINES AND HD
Families around the world are being impacted by COVID-19, but hope is on the horizon in the form of revolutionary new vaccines which were developed in record time. How is the coronavirus impacting HD families, and should they be worried about any of the vaccines coming to market? Should HD patients get the vaccine?
Click Here
Simple, Brief Summary of Ongoing Drug Development
A number of researchers are using a wide range of approaches to develop new treatments for Huntington's disease. Here is a short summary:
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The Inherited Shame
Thorvald Steen did not know he had an uncle with the same disease as him. In this interview, he talks about when he found out about having a genetic disease and how to cope. (Video!)
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Thank you for joining our webinars!
We have been hosting webinars every week throughout this autumn.
Did you miss any of them? Find recordings here.
Click Here
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NEWS

Wave Life Sciences: setback for Huntington’s disease trials

30. March 2021. Yesterday, Wave Life Sciences gave an update on PRECISION-HD1 and PRECISION-HD2. Due to disappointing results, the biotechnology company has decided to stop ...
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WEBINAR | Speak About It: How talking can be a way to cope

In this first webinar of Speak About It, Jeanne Gravfort will talk about her own method: Free Your Mind. Learn more about how talking about ...
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WEBINAR | Improving Care for Rare Disease Patients in Europe

Rare Disease Day is taking place in February. The European Reference Network for Rare Neurological Diseases is therefore hosting a webinar on how to improve ...
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Astri Arnesen President
Astri Arnesen
President

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