European Huntington Association

We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.

  • Connect HD affected all over Europe
  • Raise awareness
  • Inform
  • Support research
EHA Board elected October 2022

OUR LATEST NEWS

Social Media takeover days! May Awareness Month 2023

During the month of May, the European Huntington Association and the International Huntington Association started the social media takeover days! A safe space for the HD community to raise their voices about important topics, such as participating in HD initiatives, some coping strategies, and their own accomplishments.

💜 We want to thank to everyone involved in this campaign: Dimitri, Jenna, Erin, Tess, Tatiana, Charlie, and Ashley.
If you missed the takeover days, here are the most inspiring moments in this video.

Building Awareness & Driving Action: Making Neurology A Public Health Priority

EFNA and EAN are delighted to welcome you to a live-streamed event of the Brain Health & Neurological Conditions MEP Interest Group on the 23rd of May, 2023.

The topic of the event is building awareness & driving action by making neurology a public health priority. Your attendance and support are greatly appreciated.


📅 Tuesday, 23rd May, 2023
🕗 8:00am – 10:00am CET

WEBINAR VIDEO 🟢 PROOF-HD study good and less good news

On April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. 🤔 Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.

The European Huntington Association, in collaboration with #Prilenia, 💻 organized a Webinar to talk about the preliminary study results from the phase 3 PROOF-HD study and what they mean.

🗣️ Listen to Dr Michael Hayden (founder and CEO of Prilenia), Dr Ralf Reilman (Principal Investigator for PROOF-HD in Europe) and Dr. Andrew Feigin (Chair at The Huntington Study Group) explaining the results and indicating further steps. 

May 18th, 2023

HD-CAB 🌎 How HD Family members influence drug development

During our last HD-CAB Advisory Board Meeting in Scotland, we were able to interview some of our Team Members and ask them about their experience and what kind of perspectives HD-CAB add to clinical research.

The HD Community Advisory Board (HD-CAB) is a partnership between The European Huntington Association, The International Huntington Association and The Huntington’s Disease Youth Organization (HDYO), to represent the voice of the global HD community and facilitate fair processes to make treatment accessible for all patients.

Check out our Online Resources

Get Active!

Together with physiotherapists, we have developed a resource to help you live an active life.

Ask the doctor

Do you have any questions about Huntington's disease? Ask our doctor!

nutrition

Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.

Sleep

Do you have trouble sleeping? Get simple tips on how to improve sleep here.

Oral care

Keeping the mouth healthy is extremely important for people affected by Huntington's disease.

online training

An online free course about Huntington’s Disease (HD) and how to provide the best care.

Learn more about our International Projects

Moving Forward

This project wants to hear and engage those traditionally less involved in Huntington Disease research.

HD Trial finder

An European platform where all Huntington’s disease trials are presented in plain language.

HD-CAB

An European platform where all Huntington’s disease trials are presented in plain language.

HealthE-RND

An online eHealth platform to improve the quality of life for those of us affected by rare diseases

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