EUROPEAN HUNTINGTON ASSOCIATION

We are an umbrella organization for Huntington’s Disease (HD) associations from 32 countries.

  • Connect HD affected all over Europe
  • Raise awareness
  • Inform
  • Support research

EHA Board elected October 2022

OUR LATEST NEWS

The EHA at the 12th European Conference on Rare Diseases and Orphan Products

Last week, we attended the European Conference on Rare Diseases and Orphan Products organized by EURORDIS in Brussels. This is the biggest conference focusing on rare diseases.

These were two intense days of learning and sharing, where more than 700 participants gathered to strengthen the voices of people impacted by rare diseases and discuss concrete measures to provide a better quality of life to all those living with a rare condition.

The Rare Disease Community is Better Together! #ECRD2024

Let’s move together for Huntington Dance

🕺 As we move through #MayAwarenessMonth, we bring you a closer look throughout the history of Huntington’s Disease.

💃 Learn all about our #HuntingtonDance initiative and help us make history around the world!

The Huntington Academy team has recently created national advisory groups composed by key HD family members and HD professionals from Belgium, Bulgaria and Spain.

📢 These national advisory groups will lend their knowledge, skills and guidance to help produce the Huntington Academy educational contents.
 
🤝 We are sure that the first-hand experiences and practical examples provided by these true HD experts will make a difference in the lives of many caregivers from the global HD community, and we wish to thank all the family members and professionals who kindly accepted to be part of this project.

🌎 Each of the three partner organizations, the Ligue Huntington Francophone Belge, the Bulgarian Huntington Association and the Asociación Española Corea de Huntington is holding an online meeting with their national group to present the background and goals of the Huntington Academy project, get the knowledgeable feedback from the members and allow the national HD community to meet and connect.

Let’s move together for Huntington Dance

🕺 Here is the choreography created by Coco Style Spain to raise awareness for Huntington’s Disease worldwide by dancing to Katy Perry’s song Fireworks.
 
💃 You can now start rehearsing the steps to publish your video during #MayAwarenessMonth as part of the Huntington Dance initiative and remember to tag us on Facebook and Instagram and use the hashtag #HuntingtonDance

Check out our Online Resources

Get Active!

Together with physiotherapists, we have developed a resource to help you live an active life.

Ask the doctor

Do you have any questions about Huntington's disease? Ask our doctor!

nutrition

Read our book on nutrition problems and solutions for to Huntington families, caregivers and medical staff.

Sleep

Do you have trouble sleeping? Get simple tips on how to improve sleep here.

Oral care

Keeping the mouth healthy is extremely important for people affected by Huntington's disease.

online training

An online free course about Huntington’s Disease (HD) and how to provide the best care.

LEARN MORE ABOUT OUR INTERNATIONAL PROJECTS

Moving Forward

This project wants to hear and engage those traditionally less involved in Huntington Disease research.

HD Trial Finder

An European platform where all Huntington’s disease trials are presented in plain language.

HD-CAB

A global initiative to represent the voice of the global HD community.

HealthE-RND

An online eHealth platform to improve the quality of life for those of us affected by rare diseases

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