Full document here

CONSENSUS STATEMENT

Improving access to care and treatment for Huntington’s Disease patients and families. Sign our petition

COVID-19 & HUNTINGTON’S DISEASE

Learn More.

Facebook
Twitter
Instagram
Youtube
Linkedin-in
Vimeo-v

Associations

Find Huntington's Disease
Associations near you

Resources

Different resources
developed for you

Ask our Doctor

Do you have any questions?
Ask our doctor

Events

Find out more about
upcoming events

Webinar: Oral Care in Huntington Disease
Webinar 5th May at 19:00pm - One of the corner stones for Quality of Life is good oral health. For people with Huntington’s there are many problems that affects the oral health 🦷 Together with Annette Carlsson, we’re running our first Webinar of #HDAwarenessMonth 2021 on how to maintain a healthy mouth and strong teeth in people with Huntington’s disease. 😊
Register Here
Webinar: Generation HD1 - Preliminary Data Analysis & Next Steps
Webinar 6th May at 18:30pm - Our second Webinar for May Awareness Month 2021💜 is with Roche. During this Webinar, Lauren Boak will be speaking about the preliminary analysis they have done of the data so far and what the next steps will be.
Register Here
Webinar: What Happened and Whats next
Webinar 12th May at 19:00pm - In this Webinar of May Awareness Month, Vissia Viglietta will be speaking on behalf of Wave Life Sciences. She would explain the results and all the good work they have been doing in improving from the updated on PRECISION-HD1 and PRECISION-HD2 medical trials. Wave would also present the promising approach that they are pursuing, the WVE-003 Project.
Register Here
Webinar 26/03 - GENERATION HD1
🌏 We organized an open Webinar to inform the HD Community about the situation for the Generation HD1 Trial.
Watch the full video
VACCINES AND HD
Families around the world are being impacted by COVID-19, but hope is on the horizon in the form of revolutionary new vaccines which were developed in record time. How is the coronavirus impacting HD families, and should they be worried about any of the vaccines coming to market? Should HD patients get the vaccine?
Click Here
Previous
Next

NEWS

Join our Light
it up 4 HD!

How to take action:

  1. Light your house with purple or blue
  2. Take a picture
  3. Upload it on social media and add #LIGHTITUP4HD
  4. Tag us! @TheEuroHuntington

News about the results from Generation HD1

As you all remember in March the independent Data Monitoring Committee advised Roche to halt dosing of the drug Tominersen.   On April 27 Scott Schobel, Medical Director & Clinical Science Leader at Roche shared the interim analyses of the results from the Generation HD1 at the CHDI therapeutics conference.

May Awareness Month 2021 is soon here!

During the Awareness month we are organizing several webinars, articles and multiple ways to include everyone into our activities. Try our Facebook Frame for the May month!

SUBSCRIBE TO OUR NEWSLETTER

CONTACT US

Astri Arnesen President
Astri Arnesen
President

London - Address - 1910 Regent Street.

hello@mycoolsite.com

+1 (555) 345 234343

© 2021 European Huntington Association. Built using WordPress and the EmpowerWP theme.