This autumn the European Huntington Association (EHA) decided to create a new section at our webpage. It’s called Our Voice and it is dedicated to the stories: the personal stories people have with Huntington’s disease and the professional stories – stories we can all learn from. In Our Voice you will first and foremost find video interviews.
We have talked with many different people: people impacted by Huntington’s disease (HD), people that carry the gene, people living in a HD family and people working with the disease.
When the EHA board member Svein Olaf Olsen interviewed Tove Berg she told him that there was one thing missing in the online world of HD: patient stories – the personal stories. This section is therefore especially created with this in mind: to give people impacted by HD a voice.
Another important aspect is to create a window into the research community, the professionals working with HD. In the “professional section” researchers can tell their stories – what their work consist of, what progresses that have been done and what to expect in the future.
Our Voice will continually be upgraded as we get more stories.
You can find the Our Voice section here or in the menu on top of this page.