On her way to board a flight to Los Angeles Mai-Lise Nguyen, Patient Partnership Director at Roche, sent an update letter to all of us who are impatiently waiting for news about the upcoming trial. 

Well, there are no concrete timeline presented yet, but the letter reassures that the preparations are in progress. Ms Nguyen and her collegaues are attending the American Academy for Neurology conference in Los Angeles the last week of April.

The trial results and Huntingtons disease will be in the spotlight as one of four presentations selected to be part of the meeting’s top-featured session.

Professor Sarah Tabrizi will present the results for several thousand neurologist. Again, we are reminded of the enourmous excitement and interest the trial gets from the medical community. Huntingtons Disease is really hot at the moment.

You can read the statement from Roche here: Community Statement



EHA Conference 2023 in Belgium

From 19-22nd of October in Blankenberge

The EHA Conference is only a few weeks away, don’t miss out on this great opportunity to learn about HD care and treatment and how to cope living with HD. Get ready for a variety of social and physical activities to get to know new people, learn and enjoy being part of a global community.