Two days ago, the European Huntington Association was granted €3,000 from European Federation of Neurological Associations and their #BrainLifeGoals Project!
The money will be used to develop HealthE-RND, an online platform to ensure access to support throughout Europe. In addition, the project is funded by the EU Joint Programme – Neurodegenerative Disease Research.
The project aims to:
1) Develop a user-friendly online platform to provide individualized services for people affected by Huntington’s disease and their companions.
2) Develop a questionnaire for people affected by Huntington’s disease and their companions to measure overall quality of life.