Throughout the year, the European Reference Network on Rare Neurological Diseases (ERN-RND) provides educational webinars on rare diseases – free and open to everyone.

The webinars are a collaboration between ERN-RND and the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN).

The webinars will treat topics related to rare diseases and include both content related to adulthood and childhood. Various aspects will be covered, from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones such as use of scales or imaging.

The webinars are tailored to clinical specialists (neurologists and paediatric neurologists), residents and staff involved in the care of patients. However, everyone are welcome to join.

You can find the full list of webinars here. Below you will find those specifically related to Huntington’s disease:

September 15 | A challenge in neurogenetics: Huntington disease in kids

September 29 | How can we develop and implement evidence based rehabilitation in rare disorders?

October 13 | Diagnostic algorithm for childhood onset chorea

October 20 | Clinical practice recommendations for physical therapy for Huntington’s disease

December 1 | Functional movement disorders: a diagnostic guide

The webinars will take place on Zoom, and you have to sign up beforehand.

Save the date and join us at the EHA Conference!

We’re bringing together families, professionals, and supporters to strengthen the HD community 💙 You can also make a difference by joining our Teaming initiative, donating just €1 per month to support families affected by Huntington’s disease. Together, we get stronger!