The 3rd of December representatives from different European institutions and organisations discussed how to ensure better access to care, services and treatment for all people affected by Huntington’s Disease.
Together with the European Federation of Neurological Associations (EFNA) the European Huntington Association (EHA) hosted a Multi-Stakeholder Virtual Roundtable two weeks ago. The meeting was led by Donna Walsh, Executive Director of EFNA.
More than 100 people attended the Virtual Roundtable.
During the meeting, representatives of the European Huntington’s Disease Network (EHDN), the European Reference Network for Rare Neurological Diseases (ERN-RND), the European Brain Council (EBC), the European Organisation for Rare Diseases (EURORDIS), and Members of the European discussed how they understand the challenges and unmet needs Huntington Disease patients face.
The representatives also talked about how we – together – can ensure better access to care and treatment for all. The discussions will contribute to a statement with clear policy asks:
– We are currently working on the document, which will be circulated with participants in the New Year for endorsement, Giulia Colombo at Incisive Health wrote in an email to the Roundtable participants.
Watch a recording of the meeting: