Rare Disease Day is taking place in February. The European Reference Network for Rare Neurological Diseases is therefore hosting a webinar on how to improve care for rare disease patients the 23rd of February.

Free of charge | Open to everyone

In this webinar, we will be discussing care of rare disease patients in Europe, focusing on rare neurological diseases, and providing different perspectives: from the clinician to the patient’s perspective and from a European level to a more local one with examples from France, Germany and Hungary.

The webinar will start with short presentations by the speakers followed by a discussion.



Tuesday, 23 of February 
15:00 Central European Time
14:00 in Portugal, England
16:00 in Finland, Greece



EHA Conference 2023 in Belgium

From 19-22nd of October in Blankenberge

The EHA Conference is only a few weeks away, don’t miss out on this great opportunity to learn about HD care and treatment and how to cope living with HD. Get ready for a variety of social and physical activities to get to know new people, learn and enjoy being part of a global community.