The European Huntington Association is devasted by the Russian attack on Ukraine and all suffering this brings to people. The HD community is known for it’s warm and inclusive heart and we want the Ukrainians to know we are here and can help guide them to get in touch with experts if they suffer from Huntington’s Disease, says Astri Arnesen President of EHA. The HD associations in Europe will do their best to help you if you contact them here
The Polish association has already helped a few Ukrainian HD patients fleeing the war and the President Danuta Lis is ready to help more.
The European Reference Networks has set up a webpage to inform all Ukrainian refugees suffering from a rare disease, about where they can find help and expertise. The webpage is available in Ukrainian and 11 other languages.
– In addition to try to help refugees affected by HD, EHA will together with partners in the HD community, explore how we can help set up a sustainable service for HD patients inside Ukraine as soon as the war is over and the rebuilding of Ukraine starts. – We want to be there to help our Ukrainian neighbours get back to a better future as quickly as possible, concludes EHA board member Svein Olaf Olsen.
The EHA Conference is only a few weeks away, don’t miss out on this great opportunity to learn about HD care and treatment and how to cope living with HD. Get ready for a variety of social and physical activities to get to know new people, learn and enjoy being part of a global community.
