We know that many HD families and patients are struggling to get the care and support they need. But we don’t know where the gaps are.

How is this for you? Do you get what you need and is it easy to access?

The European Huntington Association (EHA) has been working on an online survey trying to draw the European map of access to support and care for HD families and use this to advocate for good access for everyone affected by HD

Your response will help us get an overview we can use to fight for better access where it’s needed 🙌

It will take you about 10 minutes to respond. ✍️ We have the survey available in 20 languages and here you can find the links for the 2 versions:


EHA Conference 2023 in Belgium

From 19-22nd of October in Blankenberge

The EHA Conference is only a few weeks away, don’t miss out on this great opportunity to learn about HD care and treatment and how to cope living with HD. Get ready for a variety of social and physical activities to get to know new people, learn and enjoy being part of a global community.