MAY AWARENESS MONTH 2023

KNOWING OUR GLOBAL HD COMMUNITY

During the month of May, the European Huntington Association and the International Huntington Association started the social media takeover days! A safe space for the HD community to raise their voices about important topics, such as participating in HD initiatives, some coping strategies, and their own accomplishments.

💜 We want to thank to everyone involved in this campaign: Dimitri, Jenna, Erin, Tess, Tatiana, Charlie, and Ashley.
If you missed the takeover days, here are the most inspiring moments in this video.

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Jenna Heilman

Here you can watch the whole takeover day of Jenna, she talked about her role in HDYO, the importance of participating in HD community initiatives and more!

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Ashley

Here you can watch the whole takeover day of Ashley, she talked about raising awareness for HD in social media, her story in the global community and more!

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Erin Paterson

Here you can watch the whole takeover day of Erin, she talked about her genetic testing process and decisions, her new book “Huntington’s Disease Heroes” and more!

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Tatiana

Here you can watch the whole takeover day of Tatiana, she talked about her role at the Associação Brasil Huntington, and the importance of psychological help in the HD community.

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Tess

Here you can watch the whole takeover day of Tess, she talked about the importance of raising awareness for HD, and the impact of the global community in HD research and support.

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Dimitri

Here you can watch the whole takeover day of Dimitri, he wanted to share with us an important video of the latin american HD community and his awareness work there!

JOIN US!

EHA Conference 2023 in Belgium

From 19-22nd of October in Blankenberge

The EHA Conference is only a few weeks away, don’t miss out on this great opportunity to learn about HD care and treatment and how to cope living with HD. Get ready for a variety of social and physical activities to get to know new people, learn and enjoy being part of a global community.