[vc_row][vc_column][vc_column_text]The Huntington’s Disease (HD) community is a big network of people impacted by the disease – either personally or professionally. We call this network of people Huntingtonians coined by AliceRivières – since we are all impacted by Huntington’s in one way or another.

The patient community represents people personally affected by HD and the research community consists of professionals working with HD. These two communities are further divided into smaller organizations, networks, studies and groups.

The HD community can be a tricky jungle to maneuver and it is easy to get lost in the aconyms. Therefore, we have tried to make an overview of some of the networks that exists inside the HD community. Underneath you can find some of the patient and research organizations.[/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column][vc_custom_heading text=”The patient community” font_container=”tag:h2|font_size:23|text_align:left” google_fonts=”font_family:Arimo%3Aregular%2Citalic%2C700%2C700italic|font_style:400%20regular%3A400%3Anormal”][/vc_column][/vc_row][vc_row][vc_column][vc_separator color=”custom” accent_color=”#e50091″][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_column_text]

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Facebook

Instagram

Youtube

Twitter

Vimeo

 

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Find your local European Association here[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_column_text][/vc_column_text][vc_column_text]

Learn more about HDYO

Facebook[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space][vc_custom_heading text=”The research community” font_container=”tag:h2|font_size:23|text_align:left” google_fonts=”font_family:Arimo%3Aregular%2Citalic%2C700%2C700italic|font_style:400%20regular%3A400%3Anormal”][/vc_column][/vc_row][vc_row][vc_column][vc_separator color=”custom” accent_color=”#e014a3″][/vc_column][/vc_row][vc_row][vc_column width=”1/4″][vc_column_text]

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Learn more about CHDI[/vc_column_text][/vc_column][vc_column width=”1/4″][vc_column_text]

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Learn more about EHDN[/vc_column_text][/vc_column][vc_column width=”1/4″][vc_column_text]

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Learn more about Enroll-HD[/vc_column_text][/vc_column][vc_column width=”1/4″][vc_column_text]

[/vc_column_text][vc_column_text]HDBuzz is a high quality webpage about Huntington’s disease, presenting research news in plain language – written by HD clinicians and scientists.

Their aim is to help HD affected to get a better understanding of the latest research news.

EHDN provides HDBuzz with non-financial administrative assistance and advice. They also provide with translation support.

Learn more about HDBuzz and Huntington’s Disease[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row]

JOIN US!

EHA Conference 2023 in Belgium

From 19-22nd of October in Blankenberge

The EHA Conference is only a few weeks away, don’t miss out on this great opportunity to learn about HD care and treatment and how to cope living with HD. Get ready for a variety of social and physical activities to get to know new people, learn and enjoy being part of a global community.