The Huntington’s Disease (HD) community is a big network of people impacted by the disease – either personally or professionally. We call this network of people Huntingtonians coined by AliceRivières – since we are all impacted by Huntington’s in one way or another.
The patient community represents people personally affected by HD and the research community consists of professionals working with HD. These two communities are further divided into smaller organizations, networks, studies and groups.
The HD community can be a tricky jungle to maneuver and it is easy to get lost in the aconyms. Therefore, we have tried to make an overview of some of the networks that exists inside the HD community. Underneath you can find some of the patient and research organizations.